Comments on: Whipple Procedure

By: Melissa

Melissa — Tue, 27 Dec 2011 14:55:46 +0000

Dear Melissa,
There are a number of pancreatic enzymes that your body cannot make any longer. The pancreas makes about 15 digestive enzymes and not all of them can be replaced. I take Creon 3-4 capsules before each meal. My physician says If I am having loose stools, that contains Fat or Oily to increase the Creon as necessary and I have found that this helps alot

I know that these meds are very expensive. Some drug companies will offer a discount price. If you need any help with this do not hesitate to e mail me
linda@hagemanfoundation.org

At this time we have had a generous benefactor that will double any donations that we recieve until January 15,1012.
Wvwey little bit helps even a small donation will help us to keep this non profit going.

Thank-You for your support
Linda

By: Melissa Kinser

Melissa Kinser — Sat, 24 Dec 2011 02:23:54 +0000

Well its been almost a year since my total whipple procedure, gas still comes and goes thank the heavens above my husband tolerates my (as we like to call it my blotation device) teehee or in the words of my kids im the last air bender lmao. Anyway doing well i take 660 enzymes a month now to supplement what i aint got which is nothing left. I also take a anti spasm pill when my guts decide to start rolling. at least it aint loritab anymore can we say caca. i did have a little spell in october but found out why i had all these problems in the first place. alpha-1 antitrypsin enzyme deficiency disorder let me tell ya that sucks a big one to but oh well i just pray that im still breathing and that my family is so supportive of me

By: linda

linda — Tue, 13 Dec 2011 13:24:01 +0000

Dear James,
At Mayo Clinic, Rochester, MN. Dr Kendrick is doing Whipple Procedures with a Laprascope The information is on the site American Multiple Endocrine Neoplasia Support http://www.amensupport.org I will send the you tube link to you also as I have just gotten a You Tube Video of Dr. David Farley, MD, at Mayo Clinic who does an explaination of what the Whipple Procedure involves.

By: linda

linda — Tue, 13 Dec 2011 13:16:14 +0000

Hi Melissa,
As far as the GAS you are having the Pancreas not only produces insulin but also digestive enzymes also, there are digestive enzymes that your physician can prescribe for you.

By: James Hood

James Hood — Tue, 13 Dec 2011 01:28:13 +0000

I came across this blog while searching for info on my upcoming Whipple Procedure. I am 52 lost alot of weight this year. Worried about that. Can anyone tell me what to expect?
Thank You
James Hood
Portland Or.

By: linda

linda — Fri, 25 Nov 2011 13:40:24 +0000

I am so sorry; but do not give up the battle, educate you and be a good advocate, and find a physician that you trust. Linda@hagemanfoundation.org You may benefit fro our MY WHIPPLE page at http://www.mywhipple.org PAN CAN and the Lustgarten Foundation are
great sits to look at. All the best. Linda

By: Angela

Angela — Thu, 06 Oct 2011 03:11:12 +0000

Good Evening All,

Well, Im back. I went in to have the whipple on 9/07/11, when i woke up in recovery I saw my surgeon and said did you get it all…he looked me in the eyes, touched my shoulder and started to explain that they were unable to remove all of the tumor from the head of the pancreas, however they took a large portion and sent it to pathology. It is cancerous/adenoma, stage 3. They were unable to remove all of it because it grew around a major artery and the procedure would have killed me right there. Anyway, I saw the oncologist yesterday, he explained the chmo drugs and all of the adverse reactions…yuck. So, for an additional month or two, I figure I will just do vitamins, vegetables, juice, exercise, deep breathe…I want to enjoy the quality of life I have left, not to be sick almost immediately. I am not giving up, I am just doing another option…both are 50/50. Anyway, I just wanted to update you Linda on what is happening. I appreciate your response to my email, you are sweet lady. Thank you, Angela

By: Linda Hageman, RN

Linda Hageman, RN — Fri, 19 Aug 2011 21:57:01 +0000

Hi Donna,
It is very normal for you to feel scared, etc; however you need to do your research and get to a Major Medical Center. the reason is that the Whipple Procedures done at some of the larger Medical will have Endocrine Surgeons and the more you have someone, who had done several/year are more experience.

Linda Hageman, RN

By: Donna

Donna — Fri, 19 Aug 2011 14:35:09 +0000

Hello Angela…being scared is pretty natural. Doing lots of research helps me in that regard. Good luck to you as well!!

By: Linda Hageman, RN

Linda Hageman, RN — Fri, 19 Aug 2011 13:17:33 +0000

My Goodness! If you will email me directly linda@hagemanfoundation.org I would be happy to get you some information on major medical centers and endocrine surgeons in your area Linda Hageman, RN