Comments on: Whipple Procedure http://hagemanfoundation.org/whipple-procedure Sun, 15 Apr 2012 10:00:02 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Pamela http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-9417 Pamela Fri, 24 Feb 2012 08:41:49 +0000 http://hagemanfoundation.org/?p=439#comment-9417 Hi, I am 38 years old and had the surgery last year in april. I was diagnosed with a ascinar carcenoma (a rare form of pancreatic cancer). I documented my journey and hope that my experiences help someone else. www.joydespitecancer.com After the surgery I did 5 weeks of radiation and 4 months of chemo. In December the doctor said I am cancer free so I'm trying to just live (I have a 6 year old and a 19 month old). I have horrible gas so I decided to do a search to see if others had this issue. I have enzymes BUT I have not taken them, didn't think I needed them but thanks to this site I am going to start taking them consistently right now. God bless us all! Hi, I am 38 years old and had the surgery last year in april. I was diagnosed with a ascinar carcenoma (a rare form of pancreatic cancer). I documented my journey and hope that my experiences help someone else.

http://www.joydespitecancer.com

After the surgery I did 5 weeks of radiation and 4 months of chemo. In December the doctor said I am cancer free so I’m trying to just live (I have a 6 year old and a 19 month old). I have horrible gas so I decided to do a search to see if others had this issue. I have enzymes BUT I have not taken them, didn’t think I needed them but thanks to this site I am going to start taking them consistently right now.

God bless us all!

]]> By: LCG http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-9389 LCG Mon, 20 Feb 2012 22:10:16 +0000 http://hagemanfoundation.org/?p=439#comment-9389 My son who is 36 had his surgery approximately a year ago. He is doing well while still adjusting to how much and what to eat. His surgeon said he did not have to take creon while his GI doctor prescribed the highest dosage for him (still a little confused about that). He recently found out that he will have to have a j pouch as a portion of his large intestines was left after surgery when he was 10 and of course has polyps (not malignant at this point). Any words of encouragement would be much appreciated. My son who is 36 had his surgery approximately a year ago. He is doing well while still adjusting to how much and what to eat. His surgeon said he did not have to take creon while his GI doctor prescribed the highest dosage for him (still a little confused about that). He recently found out that he will have to have a j pouch as a portion of his large intestines was left after surgery when he was 10 and of course has polyps (not malignant at this point). Any words of encouragement would be much appreciated.

]]> By: Melissa http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-8582 Melissa Tue, 27 Dec 2011 14:55:46 +0000 http://hagemanfoundation.org/?p=439#comment-8582 Dear Melissa, There are a number of pancreatic enzymes that your body cannot make any longer. The pancreas makes about 15 digestive enzymes and not all of them can be replaced. I take Creon 3-4 capsules before each meal. My physician says If I am having loose stools, that contains Fat or Oily to increase the Creon as necessary and I have found that this helps alot I know that these meds are very expensive. Some drug companies will offer a discount price. If you need any help with this do not hesitate to e mail me linda@hagemanfoundation.org At this time we have had a generous benefactor that will double any donations that we recieve until January 15,1012. Wvwey little bit helps even a small donation will help us to keep this non profit going. Thank-You for your support Linda Dear Melissa,
There are a number of pancreatic enzymes that your body cannot make any longer. The pancreas makes about 15 digestive enzymes and not all of them can be replaced. I take Creon 3-4 capsules before each meal. My physician says If I am having loose stools, that contains Fat or Oily to increase the Creon as necessary and I have found that this helps alot

I know that these meds are very expensive. Some drug companies will offer a discount price. If you need any help with this do not hesitate to e mail me
linda@hagemanfoundation.org

At this time we have had a generous benefactor that will double any donations that we recieve until January 15,1012.
Wvwey little bit helps even a small donation will help us to keep this non profit going.

Thank-You for your support
Linda

]]> By: Melissa Kinser http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-8509 Melissa Kinser Sat, 24 Dec 2011 02:23:54 +0000 http://hagemanfoundation.org/?p=439#comment-8509 Well its been almost a year since my total whipple procedure, gas still comes and goes thank the heavens above my husband tolerates my (as we like to call it my blotation device) teehee or in the words of my kids im the last air bender lmao. Anyway doing well i take 660 enzymes a month now to supplement what i aint got which is nothing left. I also take a anti spasm pill when my guts decide to start rolling. at least it aint loritab anymore can we say caca. i did have a little spell in october but found out why i had all these problems in the first place. alpha-1 antitrypsin enzyme deficiency disorder let me tell ya that sucks a big one to but oh well i just pray that im still breathing and that my family is so supportive of me Well its been almost a year since my total whipple procedure, gas still comes and goes thank the heavens above my husband tolerates my (as we like to call it my blotation device) teehee or in the words of my kids im the last air bender lmao. Anyway doing well i take 660 enzymes a month now to supplement what i aint got which is nothing left. I also take a anti spasm pill when my guts decide to start rolling. at least it aint loritab anymore can we say caca. i did have a little spell in october but found out why i had all these problems in the first place. alpha-1 antitrypsin enzyme deficiency disorder let me tell ya that sucks a big one to but oh well i just pray that im still breathing and that my family is so supportive of me

]]> By: linda http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-8309 linda Tue, 13 Dec 2011 13:24:01 +0000 http://hagemanfoundation.org/?p=439#comment-8309 Dear James, At Mayo Clinic, Rochester, MN. Dr Kendrick is doing Whipple Procedures with a Laprascope The information is on the site American Multiple Endocrine Neoplasia Support www.amensupport.org I will send the you tube link to you also as I have just gotten a You Tube Video of Dr. David Farley, MD, at Mayo Clinic who does an explaination of what the Whipple Procedure involves. Dear James,
At Mayo Clinic, Rochester, MN. Dr Kendrick is doing Whipple Procedures with a Laprascope The information is on the site American Multiple Endocrine Neoplasia Support http://www.amensupport.org I will send the you tube link to you also as I have just gotten a You Tube Video of Dr. David Farley, MD, at Mayo Clinic who does an explaination of what the Whipple Procedure involves.

]]> By: linda http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-8308 linda Tue, 13 Dec 2011 13:16:14 +0000 http://hagemanfoundation.org/?p=439#comment-8308 Hi Melissa, As far as the GAS you are having the Pancreas not only produces insulin but also digestive enzymes also, there are digestive enzymes that your physician can prescribe for you. Hi Melissa,
As far as the GAS you are having the Pancreas not only produces insulin but also digestive enzymes also, there are digestive enzymes that your physician can prescribe for you.

]]> By: James Hood http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-8295 James Hood Tue, 13 Dec 2011 01:28:13 +0000 http://hagemanfoundation.org/?p=439#comment-8295 I came across this blog while searching for info on my upcoming Whipple Procedure. I am 52 lost alot of weight this year. Worried about that. Can anyone tell me what to expect? Thank You James Hood Portland Or. I came across this blog while searching for info on my upcoming Whipple Procedure. I am 52 lost alot of weight this year. Worried about that. Can anyone tell me what to expect?
Thank You
James Hood
Portland Or.

]]> By: linda http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-7851 linda Fri, 25 Nov 2011 13:40:24 +0000 http://hagemanfoundation.org/?p=439#comment-7851 I am so sorry; but do not give up the battle, educate you and be a good advocate, and find a physician that you trust. Linda@hagemanfoundation.org You may benefit fro our MY WHIPPLE page at www.mywhipple.org PAN CAN and the Lustgarten Foundation are great sits to look at. All the best. Linda I am so sorry; but do not give up the battle, educate you and be a good advocate, and find a physician that you trust. Linda@hagemanfoundation.org You may benefit fro our MY WHIPPLE page at http://www.mywhipple.org PAN CAN and the Lustgarten Foundation are
great sits to look at. All the best. Linda

]]> By: Angela http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-6994 Angela Thu, 06 Oct 2011 03:11:12 +0000 http://hagemanfoundation.org/?p=439#comment-6994 Good Evening All, Well, Im back. I went in to have the whipple on 9/07/11, when i woke up in recovery I saw my surgeon and said did you get it all...he looked me in the eyes, touched my shoulder and started to explain that they were unable to remove all of the tumor from the head of the pancreas, however they took a large portion and sent it to pathology. It is cancerous/adenoma, stage 3. They were unable to remove all of it because it grew around a major artery and the procedure would have killed me right there. Anyway, I saw the oncologist yesterday, he explained the chmo drugs and all of the adverse reactions...yuck. So, for an additional month or two, I figure I will just do vitamins, vegetables, juice, exercise, deep breathe...I want to enjoy the quality of life I have left, not to be sick almost immediately. I am not giving up, I am just doing another option...both are 50/50. Anyway, I just wanted to update you Linda on what is happening. I appreciate your response to my email, you are sweet lady. Thank you, Angela Good Evening All,

Well, Im back. I went in to have the whipple on 9/07/11, when i woke up in recovery I saw my surgeon and said did you get it all…he looked me in the eyes, touched my shoulder and started to explain that they were unable to remove all of the tumor from the head of the pancreas, however they took a large portion and sent it to pathology. It is cancerous/adenoma, stage 3. They were unable to remove all of it because it grew around a major artery and the procedure would have killed me right there. Anyway, I saw the oncologist yesterday, he explained the chmo drugs and all of the adverse reactions…yuck. So, for an additional month or two, I figure I will just do vitamins, vegetables, juice, exercise, deep breathe…I want to enjoy the quality of life I have left, not to be sick almost immediately. I am not giving up, I am just doing another option…both are 50/50. Anyway, I just wanted to update you Linda on what is happening. I appreciate your response to my email, you are sweet lady. Thank you, Angela

]]> By: Linda Hageman, RN http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-6205 Linda Hageman, RN Fri, 19 Aug 2011 21:57:01 +0000 http://hagemanfoundation.org/?p=439#comment-6205 Hi Donna, It is very normal for you to feel scared, etc; however you need to do your research and get to a Major Medical Center. the reason is that the Whipple Procedures done at some of the larger Medical will have Endocrine Surgeons and the more you have someone, who had done several/year are more experience. Linda Hageman, RN Hi Donna,
It is very normal for you to feel scared, etc; however you need to do your research and get to a Major Medical Center. the reason is that the Whipple Procedures done at some of the larger Medical will have Endocrine Surgeons and the more you have someone, who had done several/year are more experience.

Linda Hageman, RN

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