The Hageman Foundation was formed to assist patients and their families in coping with the realities of being diagnosed with Multiple Endocrine Neoplasia (MEN) and to provide them with education and support.
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is it sfe to have children if you are a men1 carrier? would doctors recommend you didn’t have children?
I do not know the answer to this question, Tammy, but am interested to find out. I was diagnosed with MEN2A, then my mother was tested and diagnosed. I am actually fearful to have a child because I am scared I will pass the gene down. I feel all genetics disorders are scary, but especially those, like ours, that are cancer producing. From research, I have learned there is a 50% chance for passing the gene. I also read, just a few days ago, that other factors, such as stress, environmental conditions, etc, can increase the likeliness of passing it.
Yes it is safe to have children. Although there is a 50/50 chance of the child inheriting the MEN genetic mutation. If a family is informed about MEN then the children can have regular medical checkups. MEN Type 1 usually does not produce any symptoms until a person is an adult. There are several new advances for the treatment of MEN. We will be presenting new information on the new websites we are working on at this moment for American Multiple Endocrine Neoplasia Support http://www.amensupport.org so be sure to check back after the first of the year.
We have created a new website called American Multiple Endocrine Neoplasia Support http://www.AMENsupport.org Please go to this updated website for information on MEN
The Best Of Heallth,
Linda Hageman, RN