Hi Everyone,
Hageman Foundation is so thankful and grateful that many people having The Whipple Procedure are visiting this site and forming good relationships and getting actual, factual, up to date medical information about having the Whipple Procedure. We have decided to dedicate a new entity and web page for important information. We are thinking about a new domain for this entity, for patients undergoing the Whipple Procedure and we will start doing more investigating on major medical centers and physicians and surgeons who do the Whipple Procedure many times a year. I have found, in my research, that the best outcomes for the Whipple Procedure is to have this very complicated at a major medical center.
Your stories about your experiences with the Whipple Procedure would help Hageman Foundation a great deal. Please do not worry your medical information and identity are protected and will not go to any other entity unless you give permission to have the info put on the blogging site or agree to have your story posted.
I am a Registered Nurse,licensed in Tennessee and I am bound in my scope of nursing practice to keep confidential medical information or any information you present to me confidential.
This is where the Hageman Foundation for Multiple Endocrine Neoplasia (MEN) has lead us and we are going to be presenting new information, on a regular basis, to all who are undergoing the Whipple Procedure. Please help me to help you for instance what king or information is or was helpful pre Whipple Procedure and Post Whipple Procedure? Have a good outcome let me know where you had your surgery done, even if you felt you had a bad experience please let us know. What are your “Pearls of Wisdom” you would advise. We can then start to provide this in an open, non judgemental writing just to let people know how others have done after the Whipple Procedure.
I will again state that we do not address the pancreatic cancer end of information because there are others who provide this kind of information and do this very well. The Whipple Procedure is not only done for Pancreatic Cancer but often times for MEN patients who many develop Pancreatic Neuroendocrine Tumors and need to undergo the Whipple Procedure.
As most of you know I myself have had to have a Total Whipple Procedure, because of Pancreatic Tumors in my pancreas. I know first hand how difficult life can be between the diabetes (Pancreatogenic Diabetes) and every day eating and the pancreatic enzymes I have to take to digest food and what is involved to live a pretty normal life without a pancreas. Anyway I would appreciate you help with this passion of mine to help provide a positive, informational, blog on the Whipple Procedure. By the way we are referred as Whipplettes those of us that are living several after the Whipple Procedures. So it may sound funny but I am putting out a call for us Whipplettes to unite and of coarse their support persons.
Please help me to help others!
Linda Hageman, RN
Hello Linda, I’m nine weeks out today from my total Whipple procedure. Mine was done at the University of Colorado hospital Anschutz medical center. I was out of bed in a day and out of the hospital in 8 days. My Pancreas was not viable enough to resection so I’m taking digestive enzymes at all meals. I’m still working on getting my blood glucose under control but the stomach “emptying” has subsided. Still easily fatigued but I’m back to work full time. My primary tip is to not over exert yourself because it’s very easy to get set back at this stage. Of paramount importance is keeping a positive attitude even when your just plain miserable. Hope this helps. Sincerely, Mark