Multiple Endocrine Neoplasia

This is good information to have I would not have said it better myself.  what I do with my 23 year old Twin Boys is I have them get a complete physicial every year and along with their annual check-up they have a calcium level drawn and a Parathroid Hormone level checked.  If the calcium and parathyroid hormone blood levels are increasing it is time to start looking at the parathyroid glands for any tumor activity.  These tumors are usually benign in MEN 1 but bear watching and possible removal (parathyroidectomy)

I too attended the seminar at MD Anderson and it was a very informative seminar on the different topics that they put on. I have recently attended the International Endocrine Surgeons Seminar in July.  Physicians are realizing that they need to have more up to date reading material  to give to patients and their families.  Hageman Foundation is the only source/non profit to provide this type of educational materials.  Also,  Hageman Foundation for Multiple Endocrine Neoplasia in colloboration with Mayo Clinic is at this time in the process of program planning a Seminar September 15-18th in Rochester, Mn.  Please send me your suggestions for program planning and mark your calender for these dates.  You can look on this site for our save the date Bookmarks contact me with your information and I will send you the information. 

Also anyone interested in a book and CD from InterScience Institute  that describes the NeuroEndocrine Tumors and what testing should be done and those diagnostic codes and testing codes for these tumors and lab test the insurances want to see (it will allow your insurance companies to  better understand the specialized test the physicians are ordering, and thus will cut down on the rejection notices you receive!!)  just send me your contact information and I will get this information to you.  InterScience Institute has graciously donated these books and CDs to Hageman Foundation to get this information into patients and physicians hands to better understand Neuroendocrine Tumors and providing the codes to help you get your testing paid in a timely fashion.

Linda Hageman, RN