Multiple Endocrine Neoplasia Interview

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Apr 14, 2011 3 Comments ››

The Mayo Clinic interviews Linda Hageman about her surgical and personal history with Multiple Endocrine Neoplasia.
Part 1 of 5


Comments

  1. Suzy Ferreira says:

    Hello I am fighting with docs and a geneticist to test me for MEN1…..it’s very scary when you know so much more about this tumour syndrome then your docs and geneticist…….I was dx with a Lung carcinoid tumour back in 2005 I am now 35 and very ill….it is very hard to cope with this disease. My father was recently dx with a tumour in his colon and I am fighting with his pathologist and oncologist to test him for carcinoid because certain stainings were not done on his tumour. His sister died from a pancreatic tumour about 15 years ago and it was not biopsied. I understand this disease affects every family differently and I pray for anyone who has to suffer with this horrific type of cancer. I feel I am fighting this battle alone because NODBODY understands it or believes that I have it….it is very frustrating. I feel sick almost everyday and taking care of my 3 boys and working is very hard and challenging at times. I am grateful for finding this website because it seems the only thing that helps me is reading about other stories and always researching and never giving up.

  2. linda says:

    Dear Suzy,
    I am sorry that you seem to have a problem getting to the right type of physician that is knowledgeable. If you will email me off line linda@hagemanfoundation.org and we an talk about the area you live in and possibly come up with a physician that will understand and be educated about endocrine conditions. I look forward to hearing fro you soon in the near future. Hang in there You are not along. Linda Hageman. RN

  3. tableau says:

    hi, that’s a pleasant send. There is some mistakes but the primary is here.