Comments on: Living with Multiple Endocrine Neoplasia http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia Sun, 15 Apr 2012 10:00:02 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: JMJ http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-9964 JMJ Sun, 15 Apr 2012 10:00:02 +0000 http://hagemanfoundation.org/?p=128#comment-9964 Hi! My name is Johnny I was diagnosed with men1 back in 2000. I have had several surgery and schedule for a second surgery on my pancreas. Now the doctor told me that they also saw a tumor on my liver. Hi! My name is Johnny I was diagnosed with men1 back in 2000. I have had several surgery and schedule for a second surgery on my pancreas. Now the doctor told me that they also saw a tumor on my liver.

]]> By: cindy http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-9834 cindy Fri, 30 Mar 2012 17:19:15 +0000 http://hagemanfoundation.org/?p=128#comment-9834 FOR ALL WHIPPLE SURVIVORS: Please join our Facebook page. We have over 200 survivors helping each other. It is a closed group: Whipple Surgery Survivors Group. FOR ALL WHIPPLE SURVIVORS:
Please join our Facebook page. We have over 200 survivors helping each other. It is a closed group: Whipple Surgery Survivors Group.

]]> By: linda http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-3564 linda Tue, 08 Mar 2011 21:46:11 +0000 http://hagemanfoundation.org/?p=128#comment-3564 Hi Annie, I have tried to email you and the emails have been kicked back for some reason. I indeed would be interested in speaking to you and getting our information out to people in Canada. I am hoping that you will return to the site again. American Multiple Endocrine Neoplasia Support that use to be called Hageman Foundation for Multiple Endocrine 501(c) 3 Tax exempt nonprofit is indeed collaborating with Mayo Clinic to present a MEN Seminar with one day dedicated to the Whipple Procedure. This will be our first seminar of what I hope to be able to produce around the country. Hope to hear from you soon. Linda Hageman, RN Hi Annie,
I have tried to email you and the emails have been kicked back for some reason. I indeed would be interested in speaking to you and getting our information out to people in Canada. I am hoping that you will return to the site again. American Multiple Endocrine Neoplasia Support that use to be called Hageman Foundation for Multiple Endocrine 501(c) 3 Tax exempt nonprofit is indeed collaborating with Mayo Clinic to present a MEN Seminar with one day dedicated to the Whipple Procedure. This will be our first seminar of what I hope to be able to produce around the country. Hope to hear from you soon.
Linda Hageman, RN

]]> By: annie laing http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-3379 annie laing Wed, 23 Feb 2011 21:06:36 +0000 http://hagemanfoundation.org/?p=128#comment-3379 Hi you all I live in canada and I am also the secretary/treasurer of Multiple Endocrine Neuroplasia Society Inc and I heard that the conference this year is at the mayo clinic in rochester from Sept 15 -18 2011 I would love to know if anyone here can help me find out if this is correct or if the conference is being held somewhere else hugs Hi you all
I live in canada and I am also the secretary/treasurer of Multiple Endocrine Neuroplasia Society Inc and I heard that the conference this year is at the mayo clinic in rochester from Sept 15 -18 2011
I would love to know if anyone here can help me find out if this is correct or if the conference is being held somewhere else
hugs

]]> By: linda http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-998 linda Sun, 21 Nov 2010 19:58:53 +0000 http://hagemanfoundation.org/?p=128#comment-998 Hi Susan, I too would be interested in learning about physicians that are in the Atlanta Area that are knowledgeable about MEN. I live in the East Tennessee area and I do know that Vanderbilt, in Nashville, has built a great Endocrine Surgery Department. In fact I have visited with them and was impressed by their knowledge and gentle care. Linda Hageman, RN Hi Susan,
I too would be interested in learning about physicians that are in the Atlanta Area that are knowledgeable about MEN. I live in the East Tennessee area and I do know that Vanderbilt, in Nashville, has built a great Endocrine Surgery Department. In fact I have visited with them and was impressed by their knowledge and gentle care. Linda Hageman, RN

]]> By: Linda http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-997 Linda Sun, 21 Nov 2010 19:54:25 +0000 http://hagemanfoundation.org/?p=128#comment-997 Hi Joe, What kind of information are you looking for? I have many resources in my library that may be able to help you. Why was your left adrenal gland and Lung removed? E mail me directly if you want to keep this information off list. linda@hagemanfoundation.org Thanks for using our website Linda Hageman, RN Hi Joe,
What kind of information are you looking for? I have many resources in my library that may be able to help you. Why was your left adrenal gland and Lung removed? E mail me directly if you want to keep this information off list. linda@hagemanfoundation.org Thanks for using our website Linda Hageman, RN

]]> By: Joe Garcia http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-983 Joe Garcia Fri, 19 Nov 2010 08:07:36 +0000 http://hagemanfoundation.org/?p=128#comment-983 Hello all...I also have MEN1. I have had 3 Parathyroid surguries...and a Carcinoid in my left lung, they removed my upper right lobe along with my left adreanal gland removed. I am seen by the Palo Alto VA hospital in CA. All they do is watch my blood for signs and ask me how I feel. Hello all…I also have MEN1. I have had 3 Parathyroid surguries…and a Carcinoid in my left lung, they removed my upper right lobe along with my left adreanal gland removed. I am seen by the Palo Alto VA hospital in CA. All they do is watch my blood for signs and ask me how I feel.

]]> By: Susan K http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-981 Susan K Fri, 19 Nov 2010 00:13:01 +0000 http://hagemanfoundation.org/?p=128#comment-981 Not sure if Terri is still checking in on the blog but I also live in the Atlanta area and have MEN1. 2 parathyroid surgeries and a full pancreatectomy. Terri - if you want to get in touch you can reach me at sken7239@gmail.com. I would certainly be curious to know which doctors you may be seeing locally. Take care all, Susan Not sure if Terri is still checking in on the blog but I also live in the Atlanta area and have MEN1. 2 parathyroid surgeries and a full pancreatectomy. Terri – if you want to get in touch you can reach me at sken7239@gmail.com. I would certainly be curious to know which doctors you may be seeing locally.

Take care all,
Susan

]]> By: designsbyjacq http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-832 designsbyjacq Wed, 27 Oct 2010 15:52:18 +0000 http://hagemanfoundation.org/?p=128#comment-832 test test

]]> By: linda http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-682 linda Sat, 09 Oct 2010 19:59:29 +0000 http://hagemanfoundation.org/?p=128#comment-682 I have tried to contact him and did not get a response. He is probably very, very busy as I know he is very into MEN's, but I will try again. Please if you could give me the info for Dr. Lairmore I will call him and try to make contact. Linda H I have tried to contact him and did not get a response. He is probably very, very busy as I know he is very into MEN’s, but I will try again. Please if you could give me the info for Dr. Lairmore I will call him and try to make contact. Linda H

]]>