Comments on: Living with Multiple Endocrine Neoplasia http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia Tue, 27 Dec 2011 14:55:46 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: linda http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-3564 linda Tue, 08 Mar 2011 21:46:11 +0000 http://hagemanfoundation.org/?p=128#comment-3564 Hi Annie, I have tried to email you and the emails have been kicked back for some reason. I indeed would be interested in speaking to you and getting our information out to people in Canada. I am hoping that you will return to the site again. American Multiple Endocrine Neoplasia Support that use to be called Hageman Foundation for Multiple Endocrine 501(c) 3 Tax exempt nonprofit is indeed collaborating with Mayo Clinic to present a MEN Seminar with one day dedicated to the Whipple Procedure. This will be our first seminar of what I hope to be able to produce around the country. Hope to hear from you soon. Linda Hageman, RN Hi Annie,
I have tried to email you and the emails have been kicked back for some reason. I indeed would be interested in speaking to you and getting our information out to people in Canada. I am hoping that you will return to the site again. American Multiple Endocrine Neoplasia Support that use to be called Hageman Foundation for Multiple Endocrine 501(c) 3 Tax exempt nonprofit is indeed collaborating with Mayo Clinic to present a MEN Seminar with one day dedicated to the Whipple Procedure. This will be our first seminar of what I hope to be able to produce around the country. Hope to hear from you soon.
Linda Hageman, RN

]]> By: annie laing http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-3379 annie laing Wed, 23 Feb 2011 21:06:36 +0000 http://hagemanfoundation.org/?p=128#comment-3379 Hi you all I live in canada and I am also the secretary/treasurer of Multiple Endocrine Neuroplasia Society Inc and I heard that the conference this year is at the mayo clinic in rochester from Sept 15 -18 2011 I would love to know if anyone here can help me find out if this is correct or if the conference is being held somewhere else hugs Hi you all
I live in canada and I am also the secretary/treasurer of Multiple Endocrine Neuroplasia Society Inc and I heard that the conference this year is at the mayo clinic in rochester from Sept 15 -18 2011
I would love to know if anyone here can help me find out if this is correct or if the conference is being held somewhere else
hugs

]]> By: linda http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-998 linda Sun, 21 Nov 2010 19:58:53 +0000 http://hagemanfoundation.org/?p=128#comment-998 Hi Susan, I too would be interested in learning about physicians that are in the Atlanta Area that are knowledgeable about MEN. I live in the East Tennessee area and I do know that Vanderbilt, in Nashville, has built a great Endocrine Surgery Department. In fact I have visited with them and was impressed by their knowledge and gentle care. Linda Hageman, RN Hi Susan,
I too would be interested in learning about physicians that are in the Atlanta Area that are knowledgeable about MEN. I live in the East Tennessee area and I do know that Vanderbilt, in Nashville, has built a great Endocrine Surgery Department. In fact I have visited with them and was impressed by their knowledge and gentle care. Linda Hageman, RN

]]> By: Linda http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-997 Linda Sun, 21 Nov 2010 19:54:25 +0000 http://hagemanfoundation.org/?p=128#comment-997 Hi Joe, What kind of information are you looking for? I have many resources in my library that may be able to help you. Why was your left adrenal gland and Lung removed? E mail me directly if you want to keep this information off list. linda@hagemanfoundation.org Thanks for using our website Linda Hageman, RN Hi Joe,
What kind of information are you looking for? I have many resources in my library that may be able to help you. Why was your left adrenal gland and Lung removed? E mail me directly if you want to keep this information off list. linda@hagemanfoundation.org Thanks for using our website Linda Hageman, RN

]]> By: Joe Garcia http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-983 Joe Garcia Fri, 19 Nov 2010 08:07:36 +0000 http://hagemanfoundation.org/?p=128#comment-983 Hello all...I also have MEN1. I have had 3 Parathyroid surguries...and a Carcinoid in my left lung, they removed my upper right lobe along with my left adreanal gland removed. I am seen by the Palo Alto VA hospital in CA. All they do is watch my blood for signs and ask me how I feel. Hello all…I also have MEN1. I have had 3 Parathyroid surguries…and a Carcinoid in my left lung, they removed my upper right lobe along with my left adreanal gland removed. I am seen by the Palo Alto VA hospital in CA. All they do is watch my blood for signs and ask me how I feel.

]]> By: Susan K http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-981 Susan K Fri, 19 Nov 2010 00:13:01 +0000 http://hagemanfoundation.org/?p=128#comment-981 Not sure if Terri is still checking in on the blog but I also live in the Atlanta area and have MEN1. 2 parathyroid surgeries and a full pancreatectomy. Terri - if you want to get in touch you can reach me at sken7239@gmail.com. I would certainly be curious to know which doctors you may be seeing locally. Take care all, Susan Not sure if Terri is still checking in on the blog but I also live in the Atlanta area and have MEN1. 2 parathyroid surgeries and a full pancreatectomy. Terri – if you want to get in touch you can reach me at sken7239@gmail.com. I would certainly be curious to know which doctors you may be seeing locally.

Take care all,
Susan

]]> By: designsbyjacq http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-832 designsbyjacq Wed, 27 Oct 2010 15:52:18 +0000 http://hagemanfoundation.org/?p=128#comment-832 test test

]]> By: linda http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-682 linda Sat, 09 Oct 2010 19:59:29 +0000 http://hagemanfoundation.org/?p=128#comment-682 I have tried to contact him and did not get a response. He is probably very, very busy as I know he is very into MEN's, but I will try again. Please if you could give me the info for Dr. Lairmore I will call him and try to make contact. Linda H I have tried to contact him and did not get a response. He is probably very, very busy as I know he is very into MEN’s, but I will try again. Please if you could give me the info for Dr. Lairmore I will call him and try to make contact. Linda H

]]> By: Kristen Foster http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-681 Kristen Foster Sat, 09 Oct 2010 19:36:41 +0000 http://hagemanfoundation.org/?p=128#comment-681 Have you been in touch with Dr. Moley at Washington University in St. Louis, MO? He is at the Barnes Hospital there. Dr. Lairmore in Texas will have info. on how to contact him as well as the team prior to Dr. Moley at Washington U that was also instrumental in finding the genetic marker for MEN 2A. Please contact me if you need help. I can look up the information of the names of those doctors as well. Thanks. Have you been in touch with Dr. Moley at Washington University in St. Louis, MO? He is at the Barnes Hospital there. Dr. Lairmore in Texas will have info. on how to contact him as well as the team prior to Dr. Moley at Washington U that was also instrumental in finding the genetic marker for MEN 2A.
Please contact me if you need help. I can look up the information of the names of those doctors as well.
Thanks.

]]> By: linda http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-629 linda Sun, 26 Sep 2010 15:47:02 +0000 http://hagemanfoundation.org/?p=128#comment-629 I too Agree with Vi. I too attended the MD Anderson MEN conference but was in different sessions so I was unable to attend the Genetic talk. Hageman Foundation for Multiple Endocrine Neoplasia is in close contact now with the Genetics Department at M D Anderson and in the near future will be having some articles on the genetics of MEN on this site. Dr. Gilbert Cote PHD is a Genetics specialist who works closely with MEN Clients. He and other MD Anderson Physicians presented Hageman Foundation for Multiple Endocrine Neoplasia at a World Conference in Italy a week ago. We are very please to have this support as we strive to become a more know organization, in the United States of America, for people who have MEN. Thank-You for posting on our page. We are in the process of having a MEN Seminar Presented by Hageman Foundation in collaboration with Mayo Clinic, in Rochester, Minnesota, September 15-18, 2011. We have secured the Site, which will be at the DoubleTree Hotel. They have graciously donated the Seminar rooms at no charge. The DoubleTree Hotel is where we always stay while at Mayo Clinic. It is a very easy walk to Mayo Clinic and in the center of Rochester.They also provide transportation around Rochester at no charge. We have negotiated a reduced room rate for people who will want to stay at the Doubletree. We are working on programming at this time and would appreciate any suggestions anyone may have for a lecture. The Mayo Clinic Physicians who work with MEN patients are going to make themselves available for appointment times if clients want to combine this Seminar with a check-up or new patient evaluations. At this time we have save the date book markers and brochures if you would like us to send some to you or have suggestions about physicians who would like to better inform their patients about this Seminar just let us know. We hope to make this a yearly event. There will not only be physicians speaking but also patients who are coming from other countries to tell their MEN stories in a different countries medical systems. I too Agree with Vi. I too attended the MD Anderson MEN conference but was in different sessions so I was unable to attend the Genetic talk. Hageman Foundation for Multiple Endocrine Neoplasia is in close contact now with the Genetics Department at M D Anderson and in the near future will be having some articles on the genetics of MEN on this site. Dr. Gilbert Cote PHD is a Genetics specialist who works closely with MEN Clients. He and other MD Anderson Physicians presented Hageman Foundation for Multiple Endocrine Neoplasia at a World Conference in Italy a week ago. We are very please to have this support as we strive to become a more know organization, in the United States of America, for people who have MEN. Thank-You for posting on our page.

We are in the process of having a MEN Seminar Presented by Hageman Foundation in collaboration with Mayo Clinic, in Rochester, Minnesota, September 15-18, 2011. We have secured the Site, which will be at the DoubleTree Hotel. They have graciously donated the Seminar rooms at no charge. The DoubleTree Hotel is where we always stay while at Mayo Clinic. It is a very easy walk to Mayo Clinic and in the center of Rochester.They also provide transportation around Rochester at no charge. We have negotiated a reduced room rate for people who will want to stay at the Doubletree. We are working on programming at this time and would appreciate any suggestions anyone may have for a lecture.

The Mayo Clinic Physicians who work with MEN patients are going to make themselves available for appointment times if clients want to combine this Seminar with a check-up or new patient evaluations.

At this time we have save the date book markers and brochures if you would like us to send some to you or have suggestions about physicians who would like to better inform their patients about this Seminar just let us know.

We hope to make this a yearly event. There will not only be physicians speaking but also patients who are coming from other countries to tell their MEN stories in a different countries medical systems.

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