Yesterday we had a meeting for Hageman Foundation with board members and fellow MEN’ers (a first for me). We are discussing the path that Hageman Foundation for MEN should begin taking the get more information out to people with MEN and their physicians. Any Ideas would be very much appreciated for instance what kind of information are you searching for, would you like to see other MEN’ers stories and how long it took for them to get the MEN diagnoses? Linda Hageman, RN
We have found a Grant Writer and this will take our Foundation to a new level. We also are starting to work on the MEN”ers Seminar for September 2011. Keep looking at the blog and we will get you information about this event as we make the plans. We are going to have the seminar in Rochester, MN. and I am working with hotels to get the best prices and reserve rooms for this event. also again what would you like to learn at an MEN seminar?
Thank You for all your suppport and comments. We need to band together to get the information about MEN so we can get a better treatment, research and advocacy for MEN.
i truthfully adore all your posting way, very interesting,
don’t quit as well as keep posting seeing that it simply just good worth to look through it,
looking forward to look over a lot more of your current stories, have a good one
Linda…this is incredible. Im reading everything. Shelly.
HI.
I agree Shelly, very good reading. Video and powerpoint good too.
Hi Heidi,
Thank-You for going to the Hageman Foundation for Multiple Endocrine and sharing your thoughts
.www.multipleendocrineneoplasia.org THE SITE WILL continue to gather information. We do check our blogging areas to make sure people are not stating their opinions
on this site.
Sincerely,
Linda Hageman, RN