How long did it take for you to get diagnosed with MEN 1?

Hi Everyone,

I am in the process of applying for some grant monies.  I need to show some data  that can be measured and I thought this would be a first good  question to find out how long the average MEN person had signs and symptoms and were not diagnosed for several years.  We could then focus on areas of education that are identified.  All info confidential and e-mails will not be given to ANYONE!

Thanks For all your support and help.  Linda Hageman, RN