I have spoken with many of you regarding the Whipple Procedure and I am pleased to announce that a new website dedicated to Information, Stories and Blogs concerning the process of haveing the Whipple Procedure done, the healing process, and a forum to speak to others who have had a Whipple Procedure is called MY WHIPPLE. The new web address will be www.mywhipple.org Look for this new website in a couple of weeks.

All of the Multiple Endocrine Neoplasia Seminar Presented by Hageman Foundation, in collaboration with Mayo Clinic in Rochester, Minnesota, September 15-17, 2011, information can be found on www.amensupport.org

Thank-You for your support and encouragement.

Yours Truly,
Linda Hageman, RN

We started our endeavor by obtaining nonprofit 501C3 status which we applied for and we received in August 2007. We also consulted many people, in the medical field, physicians from major medical centers in the USA and around the World, experts in the business world, fellow MEN’ers, and friends, who all encouraged us to pursue this endeavor, and dream, and our Family Legacy. We are the only nonprofit dedicated to Multiple Endocrine Neoplasia in the USA, which will soon be undergoing a name change, to better understand who we are, which will be American Multiple Endocrine Neoplasia Support www.amensupport.org So here we are a little over 3 years old and John and I have attended several Endocrine Surgeon Conferences (some International) and Endocrinologist Conferences.

At this time we are working on a Multiple Endocrine Neoplasia Seminar in collaboration with Mayo Clinic, September 15-18, 2011, in Rochester, MN.

We have truly been so fortunate to have had the encouragement and support of many individuals too numerous to count, but you all know who you are. Please send us your suggestions of what kind of programming you would like to have at a Multiple Endocrine Neoplasia Seminar. We are hoping to make this an annual event and forming a MEN Advocacy Group, to seek funding research for this genetic disorder. In planning this Multiple Endocrine Neoplasia Seminar I am very Thankful for the donations that have been made already, to keep expenses down for attendees. The DoubleTree Hotel has donated all of the seminar space and the audiovisual equipment for the seminar. The DoubleTree has also reduced their normal hotel rate by over $100.00 per room for the American Multiple Endocrine Neoplasia Seminar, they have set aside a block of rooms (30) and if we need more the same offer will be extended.

The Mayo Clinic Physicians are working on the programming part for the seminar. They are also going to be attending the seminar for question and answer periods (without time constraints).

We are working on obtaining Grant support for the meals, and speakers we may have to pay for, which at this time everyone has agreed to pay for travel and expenses. We will be speaking to some pharmaceutical companies for support. Dr. Barry Ferguson our resident Ask The Pharmacist works for Target and he is working on getting a discount card for Multiple Endocrine Neoplasia individuals and families for the expensive drugs that we often have to take. He knows the expense that can occur, for medications, when you have Multiple Endocrine Neoplasia, and have to take insulin, proton-pump inhibitors, pancreatic enzymes, etc just to be able to live.

Thank-You for visiting our website and I do encourage you to register when you do or leave a comment. This information goes no further than here as a medical person believe me your medical confidentiality is safe here. One of the reasons that I am asking for your information is to better keep you informed as up dates that are coming out every month and for me to seek grant monies the question is often asked how many people is your nonprofit serving? They do not ask for names, however I do have to have a way of measuring how many people we are connecting with. This also helps us formulate future MEN information that you are most interested in learning.

I am always open to suggestions and conversations.

Yours Truly,
Linda Hageman, RN

http://www.radiology.casereports.net/index.php/rcr/article/viewarticle/452/777

Linda

However, to keep the cost down we are appealing to you. We need people who are proficient and knowledgeable to write grants for American Multiple Endocrine Neoplasia Support (we will be posting this new name on the new website) be), the old address will remain the same. If any of you are proficient and would like to help us with this please contact me Grant Writing is something I cannot do. We need medical monetary support from some of the medical specialty companies. Do you know of any philanthropic entity that may want to donate? It is a great help to us to let us know if you are willing to take seminar and MEN info to your physicians offices or to give out to others that you know that have MEN.

We are trying not to charge for the seminar, but we do need some contributions for food and other incidentals that come up.
Every little bit will help.
Thank-You from the bottom of my heart.

Yours Truly,
Linda hageman, RN

Information for the MEN Seminar, in collaboration with Mayo Clinic can be found here under MEN Seminar page. If you scroll down near the bottom of the page you can see the Save the Date Bookmarks that are available. Please e-mail me linda@hagemanfoundation.org if you would like some of these bookmarks and we also have brochures to pass out to physicians, nurses, people with MEN or their families and anyone who is interested in MEN.

As we are updating our new web design there is a newer update that should be to you in the next week. I have been working for over 3 years to come to this point. I think that you will be very interested in the programing we will offer.

This seminar will also be an opportunity for us to meet face to face. Please I need support from you for this first seminar for MEN. Our vision is to make this an annual event. We hope to form an American Multiple Endocrine Neoplasia Support Advocacy Group. This will give us MEN’ers a voice regarding MEN information and funding for research through grant monies.
Thank-You all so much for your encouragement and e-mails that has given me the strength to pursue this very important work. Linda Hageman, RN