Comments for The Hageman Foundation http://hagemanfoundation.org Thu, 04 Mar 2010 19:08:34 -0800 http://wordpress.org/?v=2.9.2 hourly 1 Comment on Living with Multiple Endocrine Neoplasia by linda http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-9 linda Thu, 04 Mar 2010 19:08:34 +0000 http://hagemanfoundation.org/?p=128#comment-9 I too will be attending the MEN Seminarat MD Anderson. to speak and have an informational table. Hageman Foundation for Multiple Endocrine Neoplasia is a non profit my husband and I started 3 years ago. I had to have a complete Whipple Procedure (removal of pancreas, stomach, large intestines, gall bladder etc) I was no longer able to work as a nurse so we went to The Mayo Clinic in Rochester, MN and asked what they thought about us starting the first non-profit dedicated to MEN and all it has to offer. Since that time we have been to several Endocrine meetings and only post factual, accurate, medical information. It was one of my goals to only put out the latest and approved medical information available. Mayo Clinic is backing www.multipleendocrineneoplasia.org along with several other major medical centers. At this time we are in the process of planning a 4 day seminar at Mayo Clinic in September 2011. Please feel free to call me 865-981-8815 or e mail me. Linda Hageman, RN linda@hagemanfoundation.org I too will be attending the MEN Seminarat MD Anderson. to speak and have an informational table. Hageman Foundation for Multiple Endocrine Neoplasia is a non profit my husband and I started 3 years ago. I had to have a complete Whipple Procedure (removal of pancreas, stomach, large intestines, gall bladder etc) I was no longer able to work as a nurse so we went to The Mayo Clinic in Rochester, MN and asked what they thought about us starting the first non-profit dedicated to MEN and all it has to offer. Since that time we have been to several
Endocrine meetings and only post factual, accurate, medical information. It was one of my goals to only put out the latest and approved medical information available. Mayo Clinic is backing http://www.multipleendocrineneoplasia.org along with several other major medical centers. At this time we are in the process of planning a 4 day seminar at Mayo Clinic in September 2011.
Please feel free to call me 865-981-8815 or e mail me.
Linda Hageman, RN linda@hagemanfoundation.org

]]> Comment on Living with Multiple Endocrine Neoplasia by Vi Baggs http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-8 Vi Baggs Thu, 04 Mar 2010 18:40:49 +0000 http://hagemanfoundation.org/?p=128#comment-8 FREE MEN CONFERENCE AT MD ANDERSON. Hi everyone, Staff at MD Anderson in Houston, TX, is holding a one day free conference for all MEN patients and their family/care givers. It is being held on Saturday, June 26, 2010. Reservations can be made on line by e-mail. This information is posted on their website. Wouldn't it be great to have support from other MEN patients? Hope to see you there. VIckie FREE MEN CONFERENCE AT MD ANDERSON.

Hi everyone,

Staff at MD Anderson in Houston, TX, is holding a one day free conference for all MEN patients and their family/care givers. It is being held on Saturday, June 26, 2010. Reservations can be made on line by e-mail. This information is posted on their website. Wouldn’t it be great to have support from other MEN patients? Hope to see you there.

VIckie

]]> Comment on Living with Multiple Endocrine Neoplasia by Vi Baggs http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-7 Vi Baggs Thu, 04 Mar 2010 18:27:34 +0000 http://hagemanfoundation.org/?p=128#comment-7 Hi Terri, I am so sorry you are having to go through all of this. You are right to be concerned about your children. Have you had them tested? Have any other family members been tested? I was the first in my family to be diagnosed as well. Things just had to progress so far in me that so I could be diagnosed. Now most of my family (cousins and such) have also been tested. There are still a few who refuse to be tested. I worried for a long time and have finally come to realize that I can do nothing for them. I know a woman who has our difficulties and lives in southern Georgia. If you are interested please let me know and I will try to get you two in contact. I have just learned that there is a 1 day free MEN conference being held at MD Anderson on June 26, 2010. MD Anderson is located in Houston, TX. I have already purchased my plane tickets and registered on line for the conference. Though I have not had a return e-mail. This conference would be a great place for you to meet other people with the gene. If you want to exchange e-mail addresses please let me know. VIckie Hi Terri,

I am so sorry you are having to go through all of this. You are right to be concerned about your children. Have you had them tested? Have any other family members been tested?

I was the first in my family to be diagnosed as well. Things just had to progress so far in me that so I could be diagnosed. Now most of my family (cousins and such) have also been tested. There are still a few who refuse to be tested. I worried for a long time and have finally come to realize that I can do nothing for them.

I know a woman who has our difficulties and lives in southern Georgia. If you are interested please let me know and I will try to get you two in contact.

I have just learned that there is a 1 day free MEN conference being held at MD Anderson on June 26, 2010. MD Anderson is located in Houston, TX.

I have already purchased my plane tickets and registered on line for the conference. Though I have not had a return e-mail.

This conference would be a great place for you to meet other people with the gene.

If you want to exchange e-mail addresses please let me know.

VIckie

]]> Comment on Living with Multiple Endocrine Neoplasia by Terri Hardin http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-5 Terri Hardin Tue, 02 Mar 2010 15:35:18 +0000 http://hagemanfoundation.org/?p=128#comment-5 I, too, have been in and out of the hospital since I was 17 from conditions related to MEN1. From kidney stones, to 3 parathyroid surgeries, to most recently a distal pancreactomy and spleenectomy. Now that my pancreas is involved with multiple adenomas the diagnosis of MEN1 now has been made. I wonder about local support groups in the Atlanta area. I worry about having passed this on to my children. I hate the thought they will have to suffer as I have. I, too, have been in and out of the hospital since I was 17 from conditions related to MEN1. From kidney stones, to 3 parathyroid surgeries, to most recently a distal pancreactomy and spleenectomy. Now that my pancreas is involved with multiple adenomas the diagnosis of MEN1 now has been made. I wonder about local support groups in the Atlanta area. I worry about having passed this on to my children. I hate the thought they will have to suffer as I have.

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