Comments for The Hageman Foundation http://hagemanfoundation.org Sun, 15 Apr 2012 10:00:02 +0000 hourly 1 http://wordpress.org/?v=3.2.1 Comment on Living with Multiple Endocrine Neoplasia by JMJ http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-9964 JMJ Sun, 15 Apr 2012 10:00:02 +0000 http://hagemanfoundation.org/?p=128#comment-9964 Hi! My name is Johnny I was diagnosed with men1 back in 2000. I have had several surgery and schedule for a second surgery on my pancreas. Now the doctor told me that they also saw a tumor on my liver. Hi! My name is Johnny I was diagnosed with men1 back in 2000. I have had several surgery and schedule for a second surgery on my pancreas. Now the doctor told me that they also saw a tumor on my liver.

]]> Comment on Living with Multiple Endocrine Neoplasia by cindy http://hagemanfoundation.org/living-with-multiple-endocrine-neoplasia/comment-page-1#comment-9834 cindy Fri, 30 Mar 2012 17:19:15 +0000 http://hagemanfoundation.org/?p=128#comment-9834 FOR ALL WHIPPLE SURVIVORS: Please join our Facebook page. We have over 200 survivors helping each other. It is a closed group: Whipple Surgery Survivors Group. FOR ALL WHIPPLE SURVIVORS:
Please join our Facebook page. We have over 200 survivors helping each other. It is a closed group: Whipple Surgery Survivors Group.

]]> Comment on Whipple Procedure by Pamela http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-9417 Pamela Fri, 24 Feb 2012 08:41:49 +0000 http://hagemanfoundation.org/?p=439#comment-9417 Hi, I am 38 years old and had the surgery last year in april. I was diagnosed with a ascinar carcenoma (a rare form of pancreatic cancer). I documented my journey and hope that my experiences help someone else. www.joydespitecancer.com After the surgery I did 5 weeks of radiation and 4 months of chemo. In December the doctor said I am cancer free so I'm trying to just live (I have a 6 year old and a 19 month old). I have horrible gas so I decided to do a search to see if others had this issue. I have enzymes BUT I have not taken them, didn't think I needed them but thanks to this site I am going to start taking them consistently right now. God bless us all! Hi, I am 38 years old and had the surgery last year in april. I was diagnosed with a ascinar carcenoma (a rare form of pancreatic cancer). I documented my journey and hope that my experiences help someone else.

http://www.joydespitecancer.com

After the surgery I did 5 weeks of radiation and 4 months of chemo. In December the doctor said I am cancer free so I’m trying to just live (I have a 6 year old and a 19 month old). I have horrible gas so I decided to do a search to see if others had this issue. I have enzymes BUT I have not taken them, didn’t think I needed them but thanks to this site I am going to start taking them consistently right now.

God bless us all!

]]> Comment on Whipple Procedure by LCG http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-9389 LCG Mon, 20 Feb 2012 22:10:16 +0000 http://hagemanfoundation.org/?p=439#comment-9389 My son who is 36 had his surgery approximately a year ago. He is doing well while still adjusting to how much and what to eat. His surgeon said he did not have to take creon while his GI doctor prescribed the highest dosage for him (still a little confused about that). He recently found out that he will have to have a j pouch as a portion of his large intestines was left after surgery when he was 10 and of course has polyps (not malignant at this point). Any words of encouragement would be much appreciated. My son who is 36 had his surgery approximately a year ago. He is doing well while still adjusting to how much and what to eat. His surgeon said he did not have to take creon while his GI doctor prescribed the highest dosage for him (still a little confused about that). He recently found out that he will have to have a j pouch as a portion of his large intestines was left after surgery when he was 10 and of course has polyps (not malignant at this point). Any words of encouragement would be much appreciated.

]]> Comment on Whipple Procedure by Melissa http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-8582 Melissa Tue, 27 Dec 2011 14:55:46 +0000 http://hagemanfoundation.org/?p=439#comment-8582 Dear Melissa, There are a number of pancreatic enzymes that your body cannot make any longer. The pancreas makes about 15 digestive enzymes and not all of them can be replaced. I take Creon 3-4 capsules before each meal. My physician says If I am having loose stools, that contains Fat or Oily to increase the Creon as necessary and I have found that this helps alot I know that these meds are very expensive. Some drug companies will offer a discount price. If you need any help with this do not hesitate to e mail me linda@hagemanfoundation.org At this time we have had a generous benefactor that will double any donations that we recieve until January 15,1012. Wvwey little bit helps even a small donation will help us to keep this non profit going. Thank-You for your support Linda Dear Melissa,
There are a number of pancreatic enzymes that your body cannot make any longer. The pancreas makes about 15 digestive enzymes and not all of them can be replaced. I take Creon 3-4 capsules before each meal. My physician says If I am having loose stools, that contains Fat or Oily to increase the Creon as necessary and I have found that this helps alot

I know that these meds are very expensive. Some drug companies will offer a discount price. If you need any help with this do not hesitate to e mail me
linda@hagemanfoundation.org

At this time we have had a generous benefactor that will double any donations that we recieve until January 15,1012.
Wvwey little bit helps even a small donation will help us to keep this non profit going.

Thank-You for your support
Linda

]]> Comment on Whipple Procedure by Melissa Kinser http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-8509 Melissa Kinser Sat, 24 Dec 2011 02:23:54 +0000 http://hagemanfoundation.org/?p=439#comment-8509 Well its been almost a year since my total whipple procedure, gas still comes and goes thank the heavens above my husband tolerates my (as we like to call it my blotation device) teehee or in the words of my kids im the last air bender lmao. Anyway doing well i take 660 enzymes a month now to supplement what i aint got which is nothing left. I also take a anti spasm pill when my guts decide to start rolling. at least it aint loritab anymore can we say caca. i did have a little spell in october but found out why i had all these problems in the first place. alpha-1 antitrypsin enzyme deficiency disorder let me tell ya that sucks a big one to but oh well i just pray that im still breathing and that my family is so supportive of me Well its been almost a year since my total whipple procedure, gas still comes and goes thank the heavens above my husband tolerates my (as we like to call it my blotation device) teehee or in the words of my kids im the last air bender lmao. Anyway doing well i take 660 enzymes a month now to supplement what i aint got which is nothing left. I also take a anti spasm pill when my guts decide to start rolling. at least it aint loritab anymore can we say caca. i did have a little spell in october but found out why i had all these problems in the first place. alpha-1 antitrypsin enzyme deficiency disorder let me tell ya that sucks a big one to but oh well i just pray that im still breathing and that my family is so supportive of me

]]> Comment on Whipple Procedure by linda http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-8309 linda Tue, 13 Dec 2011 13:24:01 +0000 http://hagemanfoundation.org/?p=439#comment-8309 Dear James, At Mayo Clinic, Rochester, MN. Dr Kendrick is doing Whipple Procedures with a Laprascope The information is on the site American Multiple Endocrine Neoplasia Support www.amensupport.org I will send the you tube link to you also as I have just gotten a You Tube Video of Dr. David Farley, MD, at Mayo Clinic who does an explaination of what the Whipple Procedure involves. Dear James,
At Mayo Clinic, Rochester, MN. Dr Kendrick is doing Whipple Procedures with a Laprascope The information is on the site American Multiple Endocrine Neoplasia Support http://www.amensupport.org I will send the you tube link to you also as I have just gotten a You Tube Video of Dr. David Farley, MD, at Mayo Clinic who does an explaination of what the Whipple Procedure involves.

]]> Comment on Whipple Procedure by linda http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-8308 linda Tue, 13 Dec 2011 13:16:14 +0000 http://hagemanfoundation.org/?p=439#comment-8308 Hi Melissa, As far as the GAS you are having the Pancreas not only produces insulin but also digestive enzymes also, there are digestive enzymes that your physician can prescribe for you. Hi Melissa,
As far as the GAS you are having the Pancreas not only produces insulin but also digestive enzymes also, there are digestive enzymes that your physician can prescribe for you.

]]> Comment on About Us by linda http://hagemanfoundation.org/welcome-2/comment-page-1#comment-8306 linda Tue, 13 Dec 2011 13:06:59 +0000 http://hagemanfoundation.org/?p=716#comment-8306 Yes it is safe to have children. Although there is a 50/50 chance of the child inheriting the MEN genetic mutation. If a family is informed about MEN then the children can have regular medical checkups. MEN Type 1 usually does not produce any symptoms until a person is an adult. There are several new advances for the treatment of MEN. We will be presenting new information on the new websites we are working on at this moment for American Multiple Endocrine Neoplasia Support www.amensupport.org so be sure to check back after the first of the year. Yes it is safe to have children. Although there is a 50/50 chance of the child inheriting the MEN genetic mutation. If a family is informed about MEN then the children can have regular medical checkups. MEN Type 1 usually does not produce any symptoms until a person is an adult. There are several new advances for the treatment of MEN. We will be presenting new information on the new websites we are working on at this moment for American Multiple Endocrine Neoplasia Support http://www.amensupport.org so be sure to check back after the first of the year.

]]> Comment on Whipple Procedure by James Hood http://hagemanfoundation.org/whipple-procedure/comment-page-3#comment-8295 James Hood Tue, 13 Dec 2011 01:28:13 +0000 http://hagemanfoundation.org/?p=439#comment-8295 I came across this blog while searching for info on my upcoming Whipple Procedure. I am 52 lost alot of weight this year. Worried about that. Can anyone tell me what to expect? Thank You James Hood Portland Or. I came across this blog while searching for info on my upcoming Whipple Procedure. I am 52 lost alot of weight this year. Worried about that. Can anyone tell me what to expect?
Thank You
James Hood
Portland Or.

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