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	<title>Comments for The Hageman Foundation</title>
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	<link>http://hagemanfoundation.org</link>
	<description></description>
	<lastBuildDate>Thu, 09 Sep 2010 02:34:13 -0700</lastBuildDate>
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		<title>Comment on Multiple Endocrine Neoplasia or (MEN) by Tammy</title>
		<link>http://hagemanfoundation.org/multiple-endocrine-neoplasia-or-men/comment-page-1#comment-554</link>
		<dc:creator>Tammy</dc:creator>
		<pubDate>Thu, 09 Sep 2010 02:34:13 +0000</pubDate>
		<guid isPermaLink="false">http://hagemanfoundation.org/?p=606#comment-554</guid>
		<description>Wowo Linda it is truly amzing that you were able to get your self to a hopsital before yoi became incoherent. cannot grasp what it would feel like.  But have plenty of  family members with diabetes.  I know they DO pay attention to how they feel.  If not then trouble Good luck to you.  You are a strong women it would seem that you are able to feel grateful for those &quot;Good&quot; days. Bless you</description>
		<content:encoded><![CDATA[<p>Wowo Linda it is truly amzing that you were able to get your self to a hopsital before yoi became incoherent. cannot grasp what it would feel like.  But have plenty of  family members with diabetes.  I know they DO pay attention to how they feel.  If not then trouble Good luck to you.  You are a strong women it would seem that you are able to feel grateful for those &#8220;Good&#8221; days. Bless you</p>
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		<title>Comment on Whipple Procedure by Christine</title>
		<link>http://hagemanfoundation.org/whipple-procedure/comment-page-2#comment-551</link>
		<dc:creator>Christine</dc:creator>
		<pubDate>Wed, 08 Sep 2010 13:30:29 +0000</pubDate>
		<guid isPermaLink="false">http://hagemanfoundation.org/?p=439#comment-551</guid>
		<description>Mauda

Hello.  My husband had the whipple procedure for cancer of the pancreas.  He is 62 years old.  It was well worth it. Today 9/8 -- is just 1 day shy of 1 month since his surgery. He is doing great.  He was out golfing 3 weeks after the surgery and has been bike riding and lifting light weights since about week 2.  We also go for walks when we can. He is finally able to eat pretty much what he wants -- but obviously we are making wise nutritional choices and he does not eat nearly as much as he used to eat -- but more throughout the day.  He must take the enzymes though. Almost immediately after taking the enzymes, the nausea that he was experiencing daily was gone.  So - I would definitely recommend the enzymes after the surgery. As Bill above mentioned, there will be good days and bad - but so far the good is winning.  Good luck to you and God Bless.</description>
		<content:encoded><![CDATA[<p>Mauda</p>
<p>Hello.  My husband had the whipple procedure for cancer of the pancreas.  He is 62 years old.  It was well worth it. Today 9/8 &#8212; is just 1 day shy of 1 month since his surgery. He is doing great.  He was out golfing 3 weeks after the surgery and has been bike riding and lifting light weights since about week 2.  We also go for walks when we can. He is finally able to eat pretty much what he wants &#8212; but obviously we are making wise nutritional choices and he does not eat nearly as much as he used to eat &#8212; but more throughout the day.  He must take the enzymes though. Almost immediately after taking the enzymes, the nausea that he was experiencing daily was gone.  So &#8211; I would definitely recommend the enzymes after the surgery. As Bill above mentioned, there will be good days and bad &#8211; but so far the good is winning.  Good luck to you and God Bless.</p>
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		<title>Comment on Whipple Procedure by Bill</title>
		<link>http://hagemanfoundation.org/whipple-procedure/comment-page-2#comment-549</link>
		<dc:creator>Bill</dc:creator>
		<pubDate>Tue, 07 Sep 2010 22:26:31 +0000</pubDate>
		<guid isPermaLink="false">http://hagemanfoundation.org/?p=439#comment-549</guid>
		<description>Mauda, listen, I am 50 years old and had the same neuroendocrine tumor. It took 1 1/2 years to diagnose my problem. In my case, the entire pancreas had to go as did my spleen, gallbladder, duodenumn and part of my stomach. Also, some of the veins and lymph nodes had the tumor in them.

The procedure took 11 1/2 hours; the recovery was difficult, mostly the first few weeks, as my digestive system had to restart itself. I take insuline and have to take Creon pills with everything I eat. I am now 3 months post operative and getting used to this change in my lifestyle.

You will have difficult days, but as others said, it is better than the alternative. If your health is generally good, and you expect to live well into your 80&#039;s and beyond, it seems like the surgery is worth it. You will need some sort of support system, family and friends, once you go home from the hospital. If you are not in good health, and the tumor is small, you might make another decision given that these tumors are slow growing.

Whatever you choose I wish you the best of luck!</description>
		<content:encoded><![CDATA[<p>Mauda, listen, I am 50 years old and had the same neuroendocrine tumor. It took 1 1/2 years to diagnose my problem. In my case, the entire pancreas had to go as did my spleen, gallbladder, duodenumn and part of my stomach. Also, some of the veins and lymph nodes had the tumor in them.</p>
<p>The procedure took 11 1/2 hours; the recovery was difficult, mostly the first few weeks, as my digestive system had to restart itself. I take insuline and have to take Creon pills with everything I eat. I am now 3 months post operative and getting used to this change in my lifestyle.</p>
<p>You will have difficult days, but as others said, it is better than the alternative. If your health is generally good, and you expect to live well into your 80&#8217;s and beyond, it seems like the surgery is worth it. You will need some sort of support system, family and friends, once you go home from the hospital. If you are not in good health, and the tumor is small, you might make another decision given that these tumors are slow growing.</p>
<p>Whatever you choose I wish you the best of luck!</p>
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		<title>Comment on Whipple Procedure by Anthony</title>
		<link>http://hagemanfoundation.org/whipple-procedure/comment-page-2#comment-546</link>
		<dc:creator>Anthony</dc:creator>
		<pubDate>Tue, 07 Sep 2010 13:57:21 +0000</pubDate>
		<guid isPermaLink="false">http://hagemanfoundation.org/?p=439#comment-546</guid>
		<description>mauda

Take if from Me and other people on this board, it is the right decision to have the surgery, let me First say everyone is different. I had my Whipple on Jan 11 2010 and I have been prety much back to normal 3 months after my suregy, Eating takes some time but that too will become normal again, I can say I eat alomst anything with out taking any meds. You can do this for yourself and for your kids. Imagen what you will miss out on if you don&#039;t. One of the greatest gifs kids can give you Grandchildren. Hang in there and do this. Pelase feel free to contact me if you need to talk. I have been there and done that. Please don&#039;t ever give up, I agree with janet 100% you have been given a chance grab it and run with out. some people are not that lucky.

Anthony
ant_041@yahoo.com</description>
		<content:encoded><![CDATA[<p>mauda</p>
<p>Take if from Me and other people on this board, it is the right decision to have the surgery, let me First say everyone is different. I had my Whipple on Jan 11 2010 and I have been prety much back to normal 3 months after my suregy, Eating takes some time but that too will become normal again, I can say I eat alomst anything with out taking any meds. You can do this for yourself and for your kids. Imagen what you will miss out on if you don&#8217;t. One of the greatest gifs kids can give you Grandchildren. Hang in there and do this. Pelase feel free to contact me if you need to talk. I have been there and done that. Please don&#8217;t ever give up, I agree with janet 100% you have been given a chance grab it and run with out. some people are not that lucky.</p>
<p>Anthony<br />
<a href="mailto:ant_041@yahoo.com">ant_041@yahoo.com</a></p>
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		<title>Comment on HELP by HeidiB</title>
		<link>http://hagemanfoundation.org/help/comment-page-1#comment-545</link>
		<dc:creator>HeidiB</dc:creator>
		<pubDate>Tue, 07 Sep 2010 06:49:30 +0000</pubDate>
		<guid isPermaLink="false">http://hagemanfoundation.org/?p=604#comment-545</guid>
		<description>This was in the local Brisbane paper yesterday:

Fast Tests on Genes
Super-speed gene tests will revolutionise health checks, Aussie Scientists
say.
Researchers from the Murdoch Children&#039;s Research Institute in Melbourne
have teamed up with the Broad Institute of Harvard and the Massachusetts
Institute of Technology to develop next-generation DNA sequencing that can
simultaneously test 100 genes to identify mutations that may cause diseases.
Current tests can only check one gene at a time and the new sequencing
method will be both cheaper and more time efficent.</description>
		<content:encoded><![CDATA[<p>This was in the local Brisbane paper yesterday:</p>
<p>Fast Tests on Genes<br />
Super-speed gene tests will revolutionise health checks, Aussie Scientists<br />
say.<br />
Researchers from the Murdoch Children&#8217;s Research Institute in Melbourne<br />
have teamed up with the Broad Institute of Harvard and the Massachusetts<br />
Institute of Technology to develop next-generation DNA sequencing that can<br />
simultaneously test 100 genes to identify mutations that may cause diseases.<br />
Current tests can only check one gene at a time and the new sequencing<br />
method will be both cheaper and more time efficent.</p>
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		<title>Comment on Whipple Procedure by Janet</title>
		<link>http://hagemanfoundation.org/whipple-procedure/comment-page-2#comment-531</link>
		<dc:creator>Janet</dc:creator>
		<pubDate>Sat, 04 Sep 2010 14:51:30 +0000</pubDate>
		<guid isPermaLink="false">http://hagemanfoundation.org/?p=439#comment-531</guid>
		<description>Please don&#039;t give up Mauda. You&#039;ve been given a chance - take it.</description>
		<content:encoded><![CDATA[<p>Please don&#8217;t give up Mauda. You&#8217;ve been given a chance &#8211; take it.</p>
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		<title>Comment on Pancreatic Enzymes by mauda</title>
		<link>http://hagemanfoundation.org/pancreatic-enzymes/comment-page-1#comment-513</link>
		<dc:creator>mauda</dc:creator>
		<pubDate>Wed, 01 Sep 2010 03:15:48 +0000</pubDate>
		<guid isPermaLink="false">http://hagemanfoundation.org/?p=596#comment-513</guid>
		<description>is it worth it to take all these and all the other pills?  my mother&#039;s doctor put her on a bunch of restrictions but she didn&#039;t follow them all - she said life is not worth living if you are not enjoying it.  i think NOT following the rules did NOT shorten her life but she got to live it better.</description>
		<content:encoded><![CDATA[<p>is it worth it to take all these and all the other pills?  my mother&#8217;s doctor put her on a bunch of restrictions but she didn&#8217;t follow them all &#8211; she said life is not worth living if you are not enjoying it.  i think NOT following the rules did NOT shorten her life but she got to live it better.</p>
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		<title>Comment on Whipple Procedure by mauda</title>
		<link>http://hagemanfoundation.org/whipple-procedure/comment-page-2#comment-505</link>
		<dc:creator>mauda</dc:creator>
		<pubDate>Tue, 31 Aug 2010 06:04:36 +0000</pubDate>
		<guid isPermaLink="false">http://hagemanfoundation.org/?p=439#comment-505</guid>
		<description>my ids are in their early twenties and starting their lives.  i am currently living in a one bdr. apartment with my son (and supporting him since his restaurnt just closed) but it is getting bad because he just got a girlfriend.  i have no job, just my alimony, which ends in 6 months - then it will be social security and medicare, and heve not been in my condo in mexico since i was diagnosed.  i want some reassurance that the surgery is the right thing to do given my circumstances. maybe i should just let nature take its course and not be a burden to my children.  i need some support and advice.  i am not religious, but i believe in a power greater than me.  i lived for my kids, but now they are gone.</description>
		<content:encoded><![CDATA[<p>my ids are in their early twenties and starting their lives.  i am currently living in a one bdr. apartment with my son (and supporting him since his restaurnt just closed) but it is getting bad because he just got a girlfriend.  i have no job, just my alimony, which ends in 6 months &#8211; then it will be social security and medicare, and heve not been in my condo in mexico since i was diagnosed.  i want some reassurance that the surgery is the right thing to do given my circumstances. maybe i should just let nature take its course and not be a burden to my children.  i need some support and advice.  i am not religious, but i believe in a power greater than me.  i lived for my kids, but now they are gone.</p>
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		<title>Comment on Whipple Procedure by mauda</title>
		<link>http://hagemanfoundation.org/whipple-procedure/comment-page-2#comment-504</link>
		<dc:creator>mauda</dc:creator>
		<pubDate>Tue, 31 Aug 2010 05:55:13 +0000</pubDate>
		<guid isPermaLink="false">http://hagemanfoundation.org/?p=439#comment-504</guid>
		<description>i have delayed writing because i am so negative and every one else is so positive. i am 64 years old. i had such a happy life unti 3 years ago, then my kids started leaving home.  3 1/2 years ago my husband left me after 34 years,  3 days before thanksgiving.  my life fell apart. for some reason i bought a condo in mexico (start a new life).  i kept going to tucson (4 hours away) because my kids and doctors were there. i was diagnosed with neuroendocrine pancreatic cancer (very rare) the end of april and was just scheduled for a whipple sept 10.  my doctor says it is totally curable as long as the cancer has not spread, but it has been 2 years since my symptoms started.  i am scared to death, more about the eating changes, but also have no support.  more in another email.</description>
		<content:encoded><![CDATA[<p>i have delayed writing because i am so negative and every one else is so positive. i am 64 years old. i had such a happy life unti 3 years ago, then my kids started leaving home.  3 1/2 years ago my husband left me after 34 years,  3 days before thanksgiving.  my life fell apart. for some reason i bought a condo in mexico (start a new life).  i kept going to tucson (4 hours away) because my kids and doctors were there. i was diagnosed with neuroendocrine pancreatic cancer (very rare) the end of april and was just scheduled for a whipple sept 10.  my doctor says it is totally curable as long as the cancer has not spread, but it has been 2 years since my symptoms started.  i am scared to death, more about the eating changes, but also have no support.  more in another email.</p>
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		<title>Comment on Whipple Procedure by Christine</title>
		<link>http://hagemanfoundation.org/whipple-procedure/comment-page-2#comment-503</link>
		<dc:creator>Christine</dc:creator>
		<pubDate>Mon, 30 Aug 2010 22:07:02 +0000</pubDate>
		<guid isPermaLink="false">http://hagemanfoundation.org/?p=439#comment-503</guid>
		<description>Bobbi
Thank you Bobbi

We appreciate your acknowledgement and we are so happy with your progress as well.  We will continue along this path and if we have any questions, believe me, we will ask:)  

Dr. Walsh is absolutely a wonderful doctor -- 3 weeks after surgery and my husband is doing great -- so we are very pleased.  

I will keep you posted and hope that you continue to do the same.

Have a wonderful day!
Christine

PS --- in response to the clinical trial in Ohio- yes, the one you question is absolutely the one to which I referred above.  We are very hopeful that this is something my husband will be a part of - if it makes sense to do so.</description>
		<content:encoded><![CDATA[<p>Bobbi<br />
Thank you Bobbi</p>
<p>We appreciate your acknowledgement and we are so happy with your progress as well.  We will continue along this path and if we have any questions, believe me, we will ask:)  </p>
<p>Dr. Walsh is absolutely a wonderful doctor &#8212; 3 weeks after surgery and my husband is doing great &#8212; so we are very pleased.  </p>
<p>I will keep you posted and hope that you continue to do the same.</p>
<p>Have a wonderful day!<br />
Christine</p>
<p>PS &#8212; in response to the clinical trial in Ohio- yes, the one you question is absolutely the one to which I referred above.  We are very hopeful that this is something my husband will be a part of &#8211; if it makes sense to do so.</p>
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