Outside Contributors Words and Thoughts People With Medical Experiences Relating to Multiple Endocrine Neoplasia

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American Multiple Endocrine Neoplasia Support

Nov 30, 2010 1 Comment ›› linda

New website should be posted and online by the end of this week. We appreciate all of your support to make this successful. I am wondering if people find the site easy to register at? Please let me know any suggestions for commenting or registering on the site. Thank-You Linda Hageman, RN ...

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HELP

Sep 6, 2010 1 Comment ›› linda

Hi everyone, I am desperately searching for the pancreatic stomach enzyme Viokase.  This is a pancreatic stomach enzyme that helps food digestion and I have not been able to find any since last Thursday.  Spent the day in the ER yesterday getting IV fluids and IV insulin, by the time I was at the hosp. 0600 ...

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The Whipple Procedure

Sep 2, 2010 1 Comment ›› linda

Hi Everyone, Hageman Foundation is so thankful and grateful that many people having The Whipple Procedure are visiting this site and forming good relationships and getting actual, factual, up to date medical information about having  the Whipple Procedure.  We have decided to dedicate a new entity and web page for  important information.  We are thinking about a ...

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Pancreatic Enzymes

Aug 29, 2010 1 Comment ›› linda

Hi Everyone, I too had a problem regulating the pancreatic enzymes. I was on Viokase 16 and I am now taking Viokase 8.  My physician has told me that you cannot take too much Viokase and you will have to experiment with your dosages on your meals  and foods.  The unofficial results of the Hageman Viokase ...

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Help with Insurance

Aug 25, 2010 No Comments ›› linda

Hi Everyone, I thought this may interest some of you.  This is the announcement by HHS Secretary Sebelius regarding Pre-existing Condition Insurance Plan, www.hhs.gov/news/press/2010pres/0720100701a.html.  I monitor this site regularly and will pass along new information as it becomes available.   Linda Hageman, RN

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Linda’s updates

Aug 25, 2010 No Comments ›› linda

Hi Everyone, Please do not be discouraged if your Blogs are not posted immediately they will be soon.  I have been in the hospital for several days to get IV antibiotics and IV fluids.  With the very Brittle (Pancreatogenic) Diabetes, and no Spleen, a cold or virus will land me in the hospital for several days.  ...

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Help with Medications

Aug 10, 2010 No Comments ›› linda

Hi Everyone, This week I have been putting a list together of different organizations that will help with the cost of medications and medical supplies.  As I am gathering this info please feel free to e-mail me and I can try to steer you in the right direction.  There are several options available  and the more ...

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Hageman Foundation for Multiple Endocrine Neoplasia Update

Aug 1, 2010 No Comments ›› linda

Hi Everyone, We have been pretty busy this summer.  We now have a Program and Development Director and her name is Katie Kinney.  Katie and I traveled to M D Anderson in Houston,  Texas for a one day MEN Seminar.  There were over 70 Mener's in one place at the same time!!!  We all identified ourselves ...

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When to fire your Doctor

May 21, 2010 No Comments ›› Cabana Boy

Firing a doctor is not a situation I do not foresee in every circumstance, but it became necessary in mine. The story starts when I was diagnosed with adenocarcinoma. It was in the recovery room when I first heard the word adenocarcinoma. I had it. My response was "Well, that sucks" and I followed with questions ...

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Whipple: Introduction

May 12, 2010 No Comments ›› Cabana Boy

My name is Bill and I have had the Whipple procedure because of pancreatic cancer. It was complicated by the need to resection a vein, a complication that had rendered me inoperable and hence terminal for eleven months. The critical event in that chain of circumstances was the day my oncologist ...

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