AMERICAN MULTIPLE ENDOCRINE NEOPLASIA SUPPORT
Jan 16, 2011 No Comments ›› lindaWe are proud to announce offically that Hageman Foundation for Multiple Endocrine Neoplasia is now AMERICAN MULTIPLE ENDOCRINE NEOPLASIA SUPPORT. Our newly designed and still a continual work in progress, website is www.amensupport.org We feel that this new name change better identifies our work and the non-profit's purpose. I have spoken with many of ...
Continue ReadingFacts and Questions About Multiple Endocrine Neoplasia and Carcinoid Tumors
Nov 18, 2010 5 Comments ›› lindaFrequently Asked Questions About Multiple Endocrine Neoplasia and Carcinoid Tumors Mark Lewis, M.D. What is carcinoid? The term carcinoid actually originates from the German word Karzinoide. In 1907, a pathologist at the University of Munich named Siegfried Orbendorfer recognized an unusual type of tumor growing in the small intestine of certain patients. This tumor looked different under the ...
Continue ReadingHospital Rankings
Jul 27, 2010 No Comments ›› lindaA tool to use when searching to find that major medical facility that has the most expertise for whatever your health issues are. Try www.health.usnews.com . This rating is not influenced by any medical centers or drug companies. I think this is one of the best health tools and information to search when trying to find options near your ...
Continue ReadingAMERICAN MULTIPLE ENDOCRINE NEOPLASIA SUPPORT
Feb 20, 2011 No Comments ›› lindaHi Everyone, Just wanted to remind you that there will be a presentation on "Lincoln's Secret Killer?" on National Geographic Channel, Monday, at 10pm. Some people have long held to the theory that President Lincoln had MEN 2. To find out more information on this subject there is a book called THE PHYSICAL LINCOLN, written by ...
Continue ReadingAmerican Multiple Endocrine Neoplasia Support
Nov 30, 2010 1 Comment ›› lindaNew website should be posted and online by the end of this week. We appreciate all of your support to make this successful. I am wondering if people find the site easy to register at? Please let me know any suggestions for commenting or registering on the site. Thank-You Linda Hageman, RN ...
Continue ReadingWHY WE STARTED HAGEMAN FOUNDATION SOON TO BE AMERICAN MULTIPLE ENDOCRINE NEOPLASIA SUPPORT
Nov 28, 2010 3 Comments ›› lindaHi Everyone, I have had Multiple Endocrine Neoplasia for over 25 years and have had 28 surgeries to remove endocrine tumors ending up with having to have my whole pancreas, gall bladder, spleen, part of stomach and intestines removed. After all of these surgical procedures I was unable to return to my nursing career. ...
Continue ReadingWhat MEN Tumors Look Like On Your Scans
Nov 27, 2010 No Comments ›› lindaHi Everyone, Very good Radiology article showing how the MEN Tumors show up on the different scans we have. Beware Involved Medical Language but good info. http://www.radiology.casereports.net/index.php/rcr/article/viewarticle/452/777 Linda
Continue ReadingMultiple Endocrine Neoplasia Seminar
Nov 20, 2010 No Comments ›› lindaHi Everyone, As I am working on the MEN Seminar I am thinking about the many people that are already donating to make this MEN Seminar a success. The DoubleTree Hotel is not charging for the Seminar spaces or the Audio Visual Equipment,and have decreased their room rate more that $100/room for attendees. Several physicians ...
Continue ReadingMEN Seminar Updates
Nov 19, 2010 No Comments ›› lindaHi Everyone, Information for the MEN Seminar, in collaboration with Mayo Clinic can be found here under MEN Seminar page. If you scroll down near the bottom of the page you can see the Save the Date Bookmarks that are available. Please e-mail me linda@hagemanfoundation.org if you would like some of these bookmarks and ...
Continue ReadingClinical Trials for Neuroendocrine Tumors – Update
Nov 18, 2010 No Comments ›› lindaClinical Trials for Neuroendocrine Tumors Mark Lewis, MD There is an encouraging amount of data about the use of the class of drugs called mTOR inhibitors (of which everolimus is an example) in the treatment of neuroendocrine tumors arising in the pancreas (including the ones that you and I and other MEN 1 patients develop, or at ...
Continue ReadingSuggestions For New Name For Hageman Foundation
Oct 9, 2010 No Comments ›› lindaHello Everyone, As we have been working on our Hageman Foundation for Multiple endocrine Neoplasia web site we are going to be presenting another name for our association, which will be easier to remember. We would like to have feedback from you on what names you think would be easier to remember rather than Multiple ...
Continue ReadingGood Search / Good Shop
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