There will be an MEN Seminar presented by MD Anderson, Saturday, June 26, 2010. I am in the process of obtaining the flyer for this. You could contact Thereasa Rich tarich@mdanderson.org for information. Airports that are close to M D Anderson are Bush or Hobby (Hobby is a bit closer, but is much smaller so there are usually not as many flights in). The Rotary House is connected to MD Anderson and a recommended place to stay. Also you can go to www.mdanderson.org which has lots of resources and information for people visiting from out of town. I will be attending this seminar and plan on having a table set up so and talking for a short time about Hageman Foundation for Multiple Endocrine Neoplasia and I look forward to meeting with others who have MEN. Let me know if you will be attending this seminar and we can set up a meeting. Thanks for all your support in this endeavor. www.multipleendocrineneoplasia.org or e mail me directly linda@hagemanfoundation.org
Linda Hageman, RN
Hi Everyone,
I am in the process of applying for some grant monies. I need to show some data that can be measured and I thought this would be a first good question to find out how long the average MEN person had signs and symptoms and were not diagnosed for several years. We could then focus on areas of education that are identified. All info confidential and e-mails will not be given to ANYONE!
Thanks For all your support and help. Linda Hageman, RN
Hageman Foundation is a Non-Profit Foundation founded by our family for an orphan disease called Multiple Endocrine Neoplasia. For our information, please e-mail me directly at linda@hagemanfoundation.org. To find out more about multiple endocrine neoplasia 1 (MEN 1), please browse our pages.
We at this time are planning a seminar (the first in the United States) in conjunction with Mayo Clinic for families who have this dominant genetic disease, and whose children have a 50/50 chance of having this disease passes on to future generations. Any questions or concerns can be address to me at the following phone number at 1-865-981-8815.
I am a Registered Nurse who has been studying this disease for over 20 yrs. Consequently I am interested in getting out factual, tested, investigated medical information to people who are interested in MEN 1.
For more upcoming information, please register at our site. The seminar is being planned for September 2011. If any of you have experience in putting together seminars I would appreciate you contacting me.
Blessings Linda Hageman, RN
Hi everyone,
I would like to wish everyone a very wonderful and healthy New Year. The Hageman Foundation has been working hard to bring everyone the most current, accurate, and factual medical information available concerning MEN 1. While our website and organization will focus specifically on MEN 1 and its complications, we plan to be a resource for people who need a Whipple Procedure (pancreaticoduodenectomy) and Pancreatogenic Diabetes (diabetes due to having the pancreas removed).
The Hageman Foundation will help facilitate a MEN 1 Seminar in the summer of 2011 with current plans for a Midwestern location at a major medical center. This informational seminar is long overdue and desperately needed in the MEN 1 community. I am working »» Continue reading ‘Happy New Year!’
Merry Christmas and a Happy New Year to everyone!
We have been very busy this past year. I cannot believe the holidays are here so soon. John and I have been working very hard on Hageman Foundation www.hagemanfoundation.org or www.multipleendocrineneoplasia.org. We have made many new friends and contacts and this work is incredibility rewarding. We have enlisted our nephew Michael to work on the web site and everyone agrees that he is a truly talented web page designer. Michael is now in the Philippines doing a 6 month assignment setting up a computer system for a medical center. He will be home in May and we cannot wait to see him again. I still do some volunteer work, gardening, and my favorite past time is reading by the lake. »» Continue reading ‘Merry Christmas!’
I am so glad that summer is upon us and we can once again enjoy the sunshine and warmer weather. I have added a new blog about my experiences with post Whipple nausea and vomiting so go there and check out the blog and please add your comments and suggestions of therapies that may have helped you. I am writing 4 new articles to be published soon and I will post those articles as soon as I get approval. I have been getting some questions regarding MEN Type 3. The MEN Type 3 diagnosis is not totally defined as of yet. I have consulted some physicians and there seems to be some confusion about the category MEN Type 3. Some physicians wondered if the term MEN Type 3 was being used interchangeably with MEN Type 2A or 2B. As I get more information regarding this diagnosis I will be posting more about the diagnosis MEN Type 3 on the web site. »» Continue reading ‘Summer 2009′
I am so excited to be able to present a blog where people with MEN1 can get information and resources. Believe me, I know the life of an MEN1 person. I have undergone 22 surgeries in the past 20 years. I was so amazed when I actually decided to start hagemanfoundation.org that I had been through so many procedures. I realized that I was trying to lead a normal life and would just go from procedure to procedure and concentrate on trying to get better from MEN1.
Now I know that you do not get better from MEN1, because it is a gene defect that cannot be fixed. However, being a nurse and in my studies on MEN1, I have found out that many good people are working diligently on MEN1 to provide newer testing and a better quality of life. This site is also for caregivers of MEN1 people, as my husband John has helped me with all the procedures and recovery. I hope you’ll share your comments and stories about your MEN.
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