Christine,
I am so happy that everything is going so well with the care and recovery. Keep walking, and ask the docs if they will write an order for you to take him in a wheelchair outside to get some fresh air. Walking will help the digestive system to return back to normal. I cannot tell you what you keeping in close contact to Hageman Foundation is meaning for me. This is exactly why I started this non profit. Linda H
Hi Bill,
Welcome to The Hageman Foundation for the Whipple Procedure site. You truly are not too late to be blogging on this site. It is very important for all of us with Pancreotogenic Diabetes (diabetes resulting from pancreas removal) to share our information. Recently physicians have started to recognize that without a pancreas, we are not Type 1 diabetics because we digest food at different rates. Your blogging regarding your recovery will help others in their recovery process. I too had a total Whipple Procedure done 4 yrs ago and I daily struggle with the digestion issues and the diabetes. A few hints that have helped me is within 8 weeks of having Pancreotogenic Diabetes I started on an insulin pump. I have a Medtronic insulin pump with the glucose sensor go to http://www.minimed.com for more information.
This system has truly allowed me to have a pretty normal life. Training on the pump needs to be done at an Endocrinologist Office with a Diabetes Nurse Educator.
It does take time to adjust the pump you just have to be patient. Nutrition is also a great factor with the pump Carbs are counted every time you eat and you will have to know how many carbs are in the food you are eating. After some time you will begin to just know how many carbs are in the food you are in taking. There are now apps on some of the phones that will help you especially when eating at a restaurant. The insulin pump will automatically give you a small or Basal rate of insulin all the time which is why they call some of these devices artificial pancreases.
As far as what to eat first and foremost I hope that you are on pancreatic enzymes that you take with each meal, in fact you need to take pancreatic enzymes every time you eat any food. I was never a meat eater so I cannot advise you on that, but Chicken, Fish, Bread, cereal, oatmeal, Cream of Wheat are some of the things I lived on, after the Whipple. I cannot eat most dairy but cheese and yogurt are OK for me. Veggies have to be cooked well, but later you may be able to tolerate salads etc.
I hope this helps you and if you would like to e-mail me directly linda@hagemanfoundation.org I will be happy to answer any other concerns you have.
Linda Hageman, RN
When searching for the best medical care in the U.S. please go to http://www.health.usnews.com This issue of US News is an annual issue and is not based on any apparent bias.
Hi Caroline,
I am in fact looking for physicians who know this condition well. Is there any way If I send you brochures that you could take them to his office? We are working in collaboration with Mayo Clinic, because I do not want misinformation to be posted on the web regarding anything on this site. I am trying to get the information out on MEN that is factual ,actual and medically approved on Hageman Foundation. Look through http://www.multipleendocrineneoplasia.org and let me know what you think of the site. also let me know if you would if you could use some brochures or bookmarks (a save the date bookmark) We are working again in collaboration with Mayo Clinic, in Rochester, MN. this seminar is for non-medical people and for medical personnel, It is scheduled for September 15-18, 2011.
Thank-You Caroline for using our website service and hope it was informative for you. If not let me know what concerns you have and I will research the information you need.
Linda Hageman, RN
Hi Piter,
I think I have seen your name on another site, perhaps ACOR. This Hageman Foundation for Multiple Endocrine Neoplasia is a mission and full time job for me. We are a nonprofit (501c3) which means we can search for certain government grants and anyone who would like to make a donation to Hageman Foundation could use the amount of money pledged as a write off for the USA donations. Your English is perfectly fine. If you are looking for certain information if you will e-mail me at linda@hagemanfoundation.org I will be happy to look up what you are and if I cannot find you the info I have several physicians that are working with me. linda@hagemanfoundation.org
Dear Colleen,
No words can express the sorrow I feel for your loss. But believe me, when I say, I will carry your blog, about your sister, with me near my heart. Because this is the very reason I have started this nonprofit to help people have an outlet for their grief and to be able to get the newest, latest, factual medical information on the Whipple Procedure available to anyone who needs this information to make an informed healthcare decision. Even after doing all the homework and making a decision, that everyone believes is the best decision for themselves, the Whipple Procedure still remains one of the most involved and longest surgical procedures that a person can survive. There are several things that can and do sometimes go wrong. May peace be with you and if I can do anything to help you and your family through this grief process please do not hesitate to contact me. In time you may want to honor her through her story of life and I would be more than happy to help you with this and perhaps set it up as a memoriam dedicated to her. In time not right now. Linda Hageman, RN
I am so glad to see activity here on the Whipple Procedure. I am Linda Hageman, RN and I had a Thompson Procedure 2007(which is like having a partial Whipple Procedure) and at that time 1/2 of my pancreas was removed. I lost some weight and started an exercise program and was able to come off Metformin. As I have a rare endocrine disorder my physicians at Mayo Clinic were doing endoscopy ultrasounds every 6 mos.to look at my pancreas and as I have Multiple Endocrine Neoplasia (MEN)and my father had died of pancreatic cancer they were very vigilant and proactive about my health care. I owe my life to Mayo Clinic and the physicians there. Two years after the endoscopic ultrasound Dr. David Farley came into the exam room room with a very heavy heart and he informed that within 6 mos. I had developed 9 tumors in the remaining portion of the pancreas and needed the Whipple Procedure to take out my existing pancreas (you can watch an interview Dr. David Farley and I did to contribute to Hageman Foundation and to use as a teaching tool for medical personel)www.multipleendocrineneoplasia.org. Being a nurse I read as much as I could about the Whipple Procedure and found the technical stuff was just that I could not find very much information that said anything positive about having the Whipple procedure.
Recovering from the Whipple Procedure is like doing a triathlon. You have to stay focused and accept that indeed you are now dealing with a different body.Take it one day at a time. You will have a long recovery but as hard as when you have surgery get out of bed that night or the next day. I will be posting more as we go from here so keep in touch. Linda Hageman, RN
Hageman Foundation is going to start a Whipple Procedure Blog. We are searching for people to write their stories after having a Whipple Procedure. In a few mos. I will be 4 years after the Whipple Procedure. I have gotten lots of e-mail from people that are either going to have a Whipple Procedure or have had the Whipple Procedure and are recovering. Their is also a video about having a Whipple Procedure done with a laprascope, so their are different options available. I strongly recommend that if you need a Whipple Procedure you need to research which medical center you want to have the procedure done. My pearl of wisdom is to research the surgeon that is doing your surgery, make sure the surgeon has done several of these and the hospital that you have your surgery has done several Whipple Procedure. Linda Hageman, RN
I too will be attending the MEN Seminarat MD Anderson. to speak and have an informational table. Hageman Foundation for Multiple Endocrine Neoplasia is a non profit my husband and I started 3 years ago. I had to have a complete Whipple Procedure (removal of pancreas, stomach, large intestines, gall bladder etc) I was no longer able to work as a nurse so we went to The Mayo Clinic in Rochester, MN and asked what they thought about us starting the first non-profit dedicated to MEN and all it has to offer. Since that time we have been to several
Endocrine meetings and only post factual, accurate, medical information. It was one of my goals to only put out the latest and approved medical information available. Mayo Clinic is backing http://www.multipleendocrineneoplasia.org along with several other major medical centers. At this time we are in the process of planning a 4 day seminar at Mayo Clinic in September 2011.
Please feel free to call me 865-981-8815 or e mail me.
Linda Hageman, RN linda@hagemanfoundation.org
Whipple Procedure
August 14th, 2010 at 5:58 pmChristine,
I am so happy that everything is going so well with the care and recovery. Keep walking, and ask the docs if they will write an order for you to take him in a wheelchair outside to get some fresh air. Walking will help the digestive system to return back to normal. I cannot tell you what you keeping in close contact to Hageman Foundation is meaning for me. This is exactly why I started this non profit. Linda H
Whipple Procedure
August 13th, 2010 at 5:29 amHi Bill,
Welcome to The Hageman Foundation for the Whipple Procedure site. You truly are not too late to be blogging on this site. It is very important for all of us with Pancreotogenic Diabetes (diabetes resulting from pancreas removal) to share our information. Recently physicians have started to recognize that without a pancreas, we are not Type 1 diabetics because we digest food at different rates. Your blogging regarding your recovery will help others in their recovery process. I too had a total Whipple Procedure done 4 yrs ago and I daily struggle with the digestion issues and the diabetes. A few hints that have helped me is within 8 weeks of having Pancreotogenic Diabetes I started on an insulin pump. I have a Medtronic insulin pump with the glucose sensor go to http://www.minimed.com for more information.
This system has truly allowed me to have a pretty normal life. Training on the pump needs to be done at an Endocrinologist Office with a Diabetes Nurse Educator.
It does take time to adjust the pump you just have to be patient. Nutrition is also a great factor with the pump Carbs are counted every time you eat and you will have to know how many carbs are in the food you are eating. After some time you will begin to just know how many carbs are in the food you are in taking. There are now apps on some of the phones that will help you especially when eating at a restaurant. The insulin pump will automatically give you a small or Basal rate of insulin all the time which is why they call some of these devices artificial pancreases.
As far as what to eat first and foremost I hope that you are on pancreatic enzymes that you take with each meal, in fact you need to take pancreatic enzymes every time you eat any food. I was never a meat eater so I cannot advise you on that, but Chicken, Fish, Bread, cereal, oatmeal, Cream of Wheat are some of the things I lived on, after the Whipple. I cannot eat most dairy but cheese and yogurt are OK for me. Veggies have to be cooked well, but later you may be able to tolerate salads etc.
I hope this helps you and if you would like to e-mail me directly linda@hagemanfoundation.org I will be happy to answer any other concerns you have.
Linda Hageman, RN
Whipple Procedure
July 27th, 2010 at 11:57 amWhen searching for the best medical care in the U.S. please go to http://www.health.usnews.com This issue of US News is an annual issue and is not based on any apparent bias.
Living with Multiple Endocrine Neoplasia
June 10th, 2010 at 11:24 amHi Caroline,
I am in fact looking for physicians who know this condition well. Is there any way If I send you brochures that you could take them to his office? We are working in collaboration with Mayo Clinic, because I do not want misinformation to be posted on the web regarding anything on this site. I am trying to get the information out on MEN that is factual ,actual and medically approved on Hageman Foundation. Look through http://www.multipleendocrineneoplasia.org and let me know what you think of the site. also let me know if you would if you could use some brochures or bookmarks (a save the date bookmark) We are working again in collaboration with Mayo Clinic, in Rochester, MN. this seminar is for non-medical people and for medical personnel, It is scheduled for September 15-18, 2011.
Thank-You Caroline for using our website service and hope it was informative for you. If not let me know what concerns you have and I will research the information you need.
Linda Hageman, RN
Blog
June 10th, 2010 at 11:12 amHi Piter,
I think I have seen your name on another site, perhaps ACOR. This Hageman Foundation for Multiple Endocrine Neoplasia is a mission and full time job for me. We are a nonprofit (501c3) which means we can search for certain government grants and anyone who would like to make a donation to Hageman Foundation could use the amount of money pledged as a write off for the USA donations. Your English is perfectly fine. If you are looking for certain information if you will e-mail me at linda@hagemanfoundation.org I will be happy to look up what you are and if I cannot find you the info I have several physicians that are working with me. linda@hagemanfoundation.org
Sincerely,
Linda Hageman, RN
Whipple Procedure
May 24th, 2010 at 1:29 pmDear Colleen,
No words can express the sorrow I feel for your loss. But believe me, when I say, I will carry your blog, about your sister, with me near my heart. Because this is the very reason I have started this nonprofit to help people have an outlet for their grief and to be able to get the newest, latest, factual medical information on the Whipple Procedure available to anyone who needs this information to make an informed healthcare decision. Even after doing all the homework and making a decision, that everyone believes is the best decision for themselves, the Whipple Procedure still remains one of the most involved and longest surgical procedures that a person can survive. There are several things that can and do sometimes go wrong. May peace be with you and if I can do anything to help you and your family through this grief process please do not hesitate to contact me. In time you may want to honor her through her story of life and I would be more than happy to help you with this and perhaps set it up as a memoriam dedicated to her. In time not right now. Linda Hageman, RN
Whipple Procedure
May 18th, 2010 at 6:14 amI am so glad to see activity here on the Whipple Procedure. I am Linda Hageman, RN and I had a Thompson Procedure 2007(which is like having a partial Whipple Procedure) and at that time 1/2 of my pancreas was removed. I lost some weight and started an exercise program and was able to come off Metformin. As I have a rare endocrine disorder my physicians at Mayo Clinic were doing endoscopy ultrasounds every 6 mos.to look at my pancreas and as I have Multiple Endocrine Neoplasia (MEN)and my father had died of pancreatic cancer they were very vigilant and proactive about my health care. I owe my life to Mayo Clinic and the physicians there. Two years after the endoscopic ultrasound Dr. David Farley came into the exam room room with a very heavy heart and he informed that within 6 mos. I had developed 9 tumors in the remaining portion of the pancreas and needed the Whipple Procedure to take out my existing pancreas (you can watch an interview Dr. David Farley and I did to contribute to Hageman Foundation and to use as a teaching tool for medical personel)www.multipleendocrineneoplasia.org. Being a nurse I read as much as I could about the Whipple Procedure and found the technical stuff was just that I could not find very much information that said anything positive about having the Whipple procedure.
Recovering from the Whipple Procedure is like doing a triathlon. You have to stay focused and accept that indeed you are now dealing with a different body.Take it one day at a time. You will have a long recovery but as hard as when you have surgery get out of bed that night or the next day. I will be posting more as we go from here so keep in touch. Linda Hageman, RN
What are your thoughts about having MEN and the revision of the United States Health Care Reform
May 7th, 2010 at 5:28 amHello Everyone,
Hageman Foundation is going to start a Whipple Procedure Blog. We are searching for people to write their stories after having a Whipple Procedure. In a few mos. I will be 4 years after the Whipple Procedure. I have gotten lots of e-mail from people that are either going to have a Whipple Procedure or have had the Whipple Procedure and are recovering. Their is also a video about having a Whipple Procedure done with a laprascope, so their are different options available. I strongly recommend that if you need a Whipple Procedure you need to research which medical center you want to have the procedure done. My pearl of wisdom is to research the surgeon that is doing your surgery, make sure the surgeon has done several of these and the hospital that you have your surgery has done several Whipple Procedure. Linda Hageman, RN
Follow Up
April 16th, 2010 at 2:18 pmWhat suggestions do you have?
Living with Multiple Endocrine Neoplasia
March 4th, 2010 at 11:08 amI too will be attending the MEN Seminarat MD Anderson. to speak and have an informational table. Hageman Foundation for Multiple Endocrine Neoplasia is a non profit my husband and I started 3 years ago. I had to have a complete Whipple Procedure (removal of pancreas, stomach, large intestines, gall bladder etc) I was no longer able to work as a nurse so we went to The Mayo Clinic in Rochester, MN and asked what they thought about us starting the first non-profit dedicated to MEN and all it has to offer. Since that time we have been to several
Endocrine meetings and only post factual, accurate, medical information. It was one of my goals to only put out the latest and approved medical information available. Mayo Clinic is backing http://www.multipleendocrineneoplasia.org along with several other major medical centers. At this time we are in the process of planning a 4 day seminar at Mayo Clinic in September 2011.
Please feel free to call me 865-981-8815 or e mail me.
Linda Hageman, RN linda@hagemanfoundation.org