Yesterday we had a meeting for Hageman Foundation with board members and fellow MEN’ers (a first for me). We are discussing the path that Hageman Foundation for MEN should begin taking the get more information out to people with MEN and their physicians. Any Ideas would be very much appreciated for instance what kind of information are you searching for, would you like to see other MEN’ers stories and how long it took for them to get the MEN diagnoses? Linda Hageman, RN
We have found a Grant Writer and this will take our Foundation to a new level. We also are starting to work on the MEN”ers Seminar for September 2011. Keep looking at the blog and we will get you information about this event as we make the plans. We are going to have the seminar in Rochester, MN. and I am working with hotels to get the best prices and reserve rooms for this event. also again what would you like to learn at an MEN seminar?
Thank You for all your suppport and comments. We need to band together to get the information about MEN so we can get a better treatment, research and advocacy for MEN.
We are happy to announce that we now have a grant writer. She is very familiar with the world of grant writing and programing. Her name is Katie and she will be my new right hand (Thank God). I will continue to answer questions and write medical articles. If any of you come across a great medical Re Multiple Endocrine Neoplasia please let me know. Linda Hageman, RN
Great news for Hageman Foundation for Multiple Endocrine Neoplasia
WE now have a Grant Writer to cover some of our expenses and this frees me up to do more research and writing regarding Multiple Endocrine Neoplasia and Pancreatogenic Diabetes and the Whipple Procedure.
The goals we are trying to reach:
More understandable education for Multiple Endocrine Neoplasia
Give lectures and seminars for families with Multiple Endocrine Neoplasia
Possibly supplement individuals who have a need for expensive medications
Try to help individuals get to a major medical center that is familiar with MEN
Just to name a few. Please let me know if you have any suggestions for our non profit Linda Hageman, RN
There will be an MEN Seminar presented by MD Anderson, Saturday, June 26, 2010. I am in the process of obtaining the flyer for this. You could contact Thereasa Rich tarich@mdanderson.org for information. Airports that are close to M D Anderson are Bush or Hobby (Hobby is a bit closer, but is much smaller so there are usually not as many flights in). The Rotary House is connected to MD Anderson and a recommended place to stay. Also you can go to www.mdanderson.org which has lots of resources and information for people visiting from out of town. I will be attending this seminar and plan on having a table set up so and talking for a short time about Hageman Foundation for Multiple Endocrine Neoplasia and I look forward to meeting with others who have MEN. Let me know if you will be attending this seminar and we can set up a meeting. Thanks for all your support in this endeavor. www.multipleendocrineneoplasia.org or e mail me directly linda@hagemanfoundation.org
Linda Hageman, RN
Hi Everyone,
I am in the process of applying for some grant monies. I need to show some data that can be measured and I thought this would be a first good question to find out how long the average MEN person had signs and symptoms and were not diagnosed for several years. We could then focus on areas of education that are identified. All info confidential and e-mails will not be given to ANYONE!
Thanks For all your support and help. Linda Hageman, RN
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