Archive for March, 2010

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Linda Blogs

Mar 22, 2010 4 Comments ›› linda

Yesterday we had a meeting for Hageman Foundation with board members and fellow MEN'ers (a first for me).  We are discussing the path that Hageman Foundation for MEN should begin taking the get more information out to people with MEN and their physicians.  Any Ideas would be very much appreciated for instance what kind of information ...

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Grant Writer

Mar 15, 2010 No Comments ›› linda

We are happy to announce that we now have a grant writer.  She is very familiar with the world of grant writing and programing.  Her name is Katie and she will be my new right hand  (Thank God).  I will continue to answer questions and write medical articles.  If any of you come across a ...

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Hageman foundation for Multiple Endocrine Neoplasia

Mar 10, 2010 3 Comments ›› linda

Great news for Hageman Foundation for Multiple Endocrine Neoplasia WE now have a Grant Writer to cover some of our expenses and this frees me up to do more research and writing regarding Multiple Endocrine Neoplasia and Pancreatogenic Diabetes and the Whipple Procedure. The goals we are trying to reach:      More understandable education for Multiple Endocrine Neoplasia      ...

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MEN Seminar

Mar 9, 2010 No Comments ›› linda

There will be an MEN Seminar presented by MD Anderson, Saturday, June 26, 2010.  I am in the process of obtaining the flyer for this.  You could contact Thereasa Rich tarich@mdanderson.org  for information.   Airports that are close to M D Anderson are Bush or Hobby (Hobby is a bit closer, but is much smaller so there ...

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How long did it take for you to get diagnosed with MEN 1?

Mar 8, 2010 No Comments ›› linda

Hi Everyone, I am in the process of applying for some grant monies.  I need to show some data  that can be measured and I thought this would be a first good  question to find out how long the average MEN person had signs and symptoms and were not diagnosed for several years.  We could then focus ...

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