American Multiple Endocrine Neoplasia Support
Nov 30, 2010 1 Comment ›› lindaNew website should be posted and online by the end of this week. We appreciate all of your support to make this successful. I am wondering if people find the site easy to register at? Please let me know any suggestions for commenting or registering on the site. Thank-You Linda Hageman, RN ...
Continue ReadingWHY WE STARTED HAGEMAN FOUNDATION SOON TO BE AMERICAN MULTIPLE ENDOCRINE NEOPLASIA SUPPORT
Nov 28, 2010 3 Comments ›› lindaHi Everyone, I have had Multiple Endocrine Neoplasia for over 25 years and have had 28 surgeries to remove endocrine tumors ending up with having to have my whole pancreas, gall bladder, spleen, part of stomach and intestines removed. After all of these surgical procedures I was unable to return to my nursing career. ...
Continue ReadingWhat MEN Tumors Look Like On Your Scans
Nov 27, 2010 No Comments ›› lindaHi Everyone, Very good Radiology article showing how the MEN Tumors show up on the different scans we have. Beware Involved Medical Language but good info. http://www.radiology.casereports.net/index.php/rcr/article/viewarticle/452/777 Linda
Continue ReadingMultiple Endocrine Neoplasia Seminar
Nov 20, 2010 No Comments ›› lindaHi Everyone, As I am working on the MEN Seminar I am thinking about the many people that are already donating to make this MEN Seminar a success. The DoubleTree Hotel is not charging for the Seminar spaces or the Audio Visual Equipment,and have decreased their room rate more that $100/room for attendees. Several physicians ...
Continue ReadingMEN Seminar Updates
Nov 19, 2010 No Comments ›› lindaHi Everyone, Information for the MEN Seminar, in collaboration with Mayo Clinic can be found here under MEN Seminar page. If you scroll down near the bottom of the page you can see the Save the Date Bookmarks that are available. Please e-mail me linda@hagemanfoundation.org if you would like some of these bookmarks and ...
Continue ReadingClinical Trials for Neuroendocrine Tumors – Update
Nov 18, 2010 No Comments ›› lindaClinical Trials for Neuroendocrine Tumors Mark Lewis, MD There is an encouraging amount of data about the use of the class of drugs called mTOR inhibitors (of which everolimus is an example) in the treatment of neuroendocrine tumors arising in the pancreas (including the ones that you and I and other MEN 1 patients develop, or at ...
Continue ReadingFacts and Questions About Multiple Endocrine Neoplasia and Carcinoid Tumors
Nov 18, 2010 5 Comments ›› lindaFrequently Asked Questions About Multiple Endocrine Neoplasia and Carcinoid Tumors Mark Lewis, M.D. What is carcinoid? The term carcinoid actually originates from the German word Karzinoide. In 1907, a pathologist at the University of Munich named Siegfried Orbendorfer recognized an unusual type of tumor growing in the small intestine of certain patients. This tumor looked different under the ...
Continue ReadingSuggestions For New Name For Hageman Foundation
Oct 9, 2010 No Comments ›› lindaHello Everyone, As we have been working on our Hageman Foundation for Multiple endocrine Neoplasia web site we are going to be presenting another name for our association, which will be easier to remember. We would like to have feedback from you on what names you think would be easier to remember rather than Multiple ...
Continue ReadingSEMINAR UPDATE
Oct 5, 2010 No Comments ›› lindaLinda Hageman Today we have gotten the leading Genetic Researcher of MEN genetics to commit to speaking at our MEN Seminar next September 15-18, 2011 Hageman Foundation in collaboration with Mayo Clinic, in Rochester, MN. I will keep people up to date as details are worked out as to the programming. Please e-mail me at ...
Continue ReadingINSURANCE
Oct 1, 2010 No Comments ›› lindaHi Everyone, The US Department of Health & Human services today announced the pricing and benefit information for health insurance as of October1, 2010. If you are interested go to www.healthcare.gov and click on the Learn more box and this will take you to the Insurance Finder tool. I found the rates to be higher than ...
Continue ReadingGood Search / Good Shop
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