I am so excited to be able to present a blog where people with MEN1 can get information and resources. Believe me, I know the life of an MEN1 person. I have undergone 22 surgeries in the past 20 years. I was so amazed when I actually decided to start hagemanfoundation.org that I had been through so many procedures. I realized that I was trying to lead a normal life and would just go from procedure to procedure and concentrate on trying to get better from MEN1.
Now I know that you do not get better from MEN1, because it is a gene defect that cannot be fixed. However, being a nurse and in my studies on MEN1, I have found out that many good people are working diligently on MEN1 to provide newer testing and a better quality of life. This site is also for caregivers of MEN1 people, as my husband John has helped me with all the procedures and recovery. I hope you’ll share your comments and stories about your MEN.
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